ok so after some suggestions, some googling and a chat to a peadiatrition they are now looking at hugh functioning autsim god I wish they would make up their minds, I guess they were doing what I was telling them to do, I actully had never heard of HFA & in no way do i understand it, I do know that I am going to have calm down a bit & learn to be gentle with her, learn to not get so frustrated
Butterflypirate, I'm pretty sure what you do is breath. Never expect anything, if you expect them to behave as "NT" or "normal" children do, you will be let down everytime. If you expect them to behave the same way if things happen, you expect them to meltdown all the time... they may just do that... or they may surprise you.
Seriously, get that book I suggested and read it a bit. It goes through the confusion over diagnosis and the different things that overlap. Autism, Aspergers, ODD, ADD, ADHD, Sensory Processing Disorder, Dyslexia, Learning disabilities.... all of these have overlapping behaviours associated with them. Its very hard to nut it out and often times a few of us go through different diagnosis before we find the ones that fit what we are going through. Matilda is autistic... and part of that includes sensory processing disorder. Otherwise I would say, she has severe Sensory Processing disorder +/- Autism. I have learnt to not care about the labels but care about her treatment. We have taken the Autism label but haven't treated her any different than we did before the label, and you know what? I'm still not entirely confident with our label 100% of the time.... but we are getting funding for early intervention through it, and she desperately needs that, so we will get her what she needs.
FJ- often teachers have a hard time seeing that behaviours are different at school than at home. BUT out of Matilda's school of 18 students, I know of 5 that go home and have completely different behaviours. One comes to my house, and the minute her mum opens out gate to pick her up she explodes... she's 11. She's an amazingly behaved kid here and I love her dearly, but I see that she's extremely hard work for her mum.
"The Out of Sync Child" Its written by an OT (Occupational Therapist) who specialises in Sensory Processing Disorder. Its just that 80% of people on the Autism Spectrum have SPD as well... so there is a huge amount of overlap, especially for those who are high functioning. Sometimes identifying the SPD and working with that is enough... sometimes you have to go further for other forms of help and that is when a diagnosis is helpful.
That book sounds excellent! I'll have to look into that.
Nothing has really changed for us, Brendan has been in therapies since he was 11 months old, before that he was just watched closely by the paed and CHN. To me Brendan is normal, but that's only because I don't know any better. I am realising now that Tristan is getting a bit older that Brendan has been different all along, but that's not a bad thing. I choose not to use the labels IRL, because at this age they make no difference to us, he is getting the same treatment he would with or without the label of Sensory Integration Dysfunction (I do find it amusing how it has two names lol) For Brendan to enter into EI would mean constant trips to Perth and much more strain on our family, especially financially. As it is I choose not to claim the carers allowance (the only cost in Brendan's treatment is time and fuel, all his therapies and appointments are free), but this may very well change after Brendan's paed appointment. I would like to see Brendan in EI, but I would much rather it done locally which atm is not an option.
I have 3 main concerns for Brendan right now. 1) his ears, it's infection after infection atm and we are still yet to hear from the ENT about an appointment. 2) his weight and bowels, he has been the same weight for 12 months now and has never really had a firm poo (sorry for the tmi) I am under the impression that he has some kind of intolerance, but again the Dr here has said the paed is the best person to talk to, which is not till May. And 3) School.. I'm concerned that because he is already well behind his peers, he is going to be left further behind. And I realise that school is not for another year, and a lot can happen between now and then, but enrolments are in Aug!
Everything is hanging on the paed appointment. In the meantime I just have to remember he is happy and relatively healthy compared to what could have been, Brendan has come out pretty well considering his birth.
Sorry got rambling there, but it's good to let some out.
well Hamish's appointment at the pediatric unit is next week and for some reason today I am just having a breakdown over it all. I am in tears thinking about it all.
I am worried for him so much and even more so that i get told he is fine. I know that sounds strange..
I sit and run through all his traits and problems through my head over and over...
At the moment his biggest problem seems to be when a friend doesn't want to play with him at recess or lunch he just bursts into tears, he in fact becomes inconsolable thinking nobody likes him, when this is not the case, his friend just wants to play a different game.
sorry for the ramble just having one of those days..
Tonight Monsta wee'd on the bathroom floor just decided she was too busting so she pee's on the floor I dont understand this im getting so frustrated I just want to understand why she acts this way its so upsetting
Registered User
Bookmarks