Hi Maz, huge hugs to you babe.
I don't blame you for wanting to shout out Why Me?
As for telling him I have no idea, I haven't figured out how to tell my DS he has aspergers.
I too sit on edge watching my now 2 yr old play , hoping he doesn't show the traits.
Once again big hugs and i will pass on a big drink too xxxxx
Hi guys. Just jumping in here. Is anyone from Brisbane? I just saw that UQ is offering Stepping Stones PPP classes (one on one with ) for parents in the Brisbane area with a child on the autism spectrum. It is part of a research program so it is free but places are limited. I can pm the link if anyone is interested.
Can I join in on the scotch too? Maz - really big hugs.
Just a quick hello in here - E is going through the diagnosis/funding roundabout (paed has diagnosed high functioning autism), he's got his child development unit assessment on monday and we're in the process of applying for govt funding. Fark, I can now understand why early intervention is seen as desirable, it takes so long to organise anything that I wonder whether he'll even be in a program by the time he's five (he'll be three in November). I've been meaning to pop in to the thread for a while now, but having just had Miss A haven't had much time. Sad to be joining you, but knowing that I couldn't wish for a more wonderful group of women to share this with. I was pretty apprehensive about A's birth seeing that we had our paed appointment/diagnosis only a couple of weeks before she was born, but he's actually responded much better than we expected. Any issue he's had with her arrival has manifested itself in his usual nemesis, sleep (hello matchsticks, he was up from midnight till four this morning and that was after going to bed at nearly ten - his six week old sister sleeps better than he does), as well as a little bit more lashing out (out of control kicking/hitting/flailing) when things don't go his way. But when he notices her, he's been incredibly gentle and patient with his new sister, he's never once taken out his frustrations on her (DP and I, that's a different matter). His speech seems to improved since her arrival, which is positive. Still way, way behind his peers, but getting there.
I'll be about more as we go through the process, off to a doctors appointment now.
Suse...I think we need a bloody crate of scotch now.
Yes it takes forever to get into the system the ' professionals' blame funding....I say try getting off your butt and helping instead of your dame meetings all the time might have more of a positive effect on those who need you...but allas fall's on deaf ears.
I found Mario calmed down when we had mini me....it was a blessing in disguise for us and helped him come out and be more 'normal'
And hon....its a big step to say yes i need help and need to talk to others well done
Suse I can understand your frustration
My DS has had his assessments done we have received reports and now what.........NOTHING
Autismsa are meant to do a follow up at school , they haven't . We haven't heard from anyone and have received no support apart from on here with these lovely ladies.
I have borrowed a few books on Aspergers and am trying to wadlle my way through them all. I just want my little man to get some support
I found I was a bit lost for about a month after dx THEN the Autism Advisor called me, sent me the list of providers and it all went nuts from there.
Tan - why don't you call Autism SA yourself?
Thing is - no one will tell you what to do. After you get your funding "the golden ticket" lol it's up to you to arrange services etc - but once you are in the swing (well for me anyway) things really fly along.
this is why I started this second bloody blog of mine. I want to get this sort of information out there for the newly dx, there isn't much out there about the first few months. If you don't mind chickens, in the near future I will pm you for info about your own path to dx. It really seems to vary from state to state and it's easier when you know what to expect.
Bookmarks