Registered User
J had the first part of one of the assessments today. I was so nervous about it that his dad had to take him. I just can;t handle taking him. Anyway he lasted about 1.5 hours and then they had to stop....
We have been in EI for nearly a year and still they have not come out to see him at Kindy etc. It is just SO SLOW
Lucy in the sky with diamonds.
oh DS didn't last the hour of the tests. We had to stretch it right out cos of his stress of 'getting it right' xoxoxo
Lucy in the sky with diamonds.
Fark fark farkity fark.
Had an appt here today with our neurotherapy chick. She wants further investigation becuase she doesn't believe ds has Aspergers and is leaning towards ADHD and ODD.
Why? - Superior language skills. Massive engery levels and inability to concentrate for a decent periods, the huge anger/rage issues when he can't have his own way.
I'm not surprised really. I like and trust this girl and she says - he is very perceptive of the environment around him, he is aware of the effect of his behaviour on others (and in fact often threatens to "go off") and CAN behave perfectly when it suits him. In fact he is quite the little charmer.
Recently I have been noticing these things too. Foolishly I thought it was all the hometherapy I've been doing with him. I'm sure it has helped.....but when xp called me a few weeks ago to tell me ds was the life of the party at his place I thought we were making leaps. He strides to the front door to greet his grandads work buddies, shakes their hands and asks how their day is. Sits on the wives knees and makes jokes and chats away.
He has started to deal with other kids better - he is able to walk away from problems, and seems to have a better understanding of friendships. He made friends with a few kids on bikes out the front last week. He has no problem approaching people anymore. In fact he walked straight up to a group of guys down the main street (one of them had a snake!), puts out his hand and said "Hi, I'm Mitch, and that's my dad over there, can I see?" Surely this isn't Aspergers/Autism?
But what about the silly rituals - The Simpsons, the trains, Star Wars.......
I'm so tired from thinking about it. Bourbon time.
to hard to say babe...shiata brick and al the compost with it!!!!
Know what I find so dame frustrating...the fact that our kids haveto have a 'label' to get any sort of help what so ever.
My pead discribed the difference of autism/aspy to me last week..autism is more non social were aspy is more in your face social...Mateauz is full on in your face/take me home I dont care sort of kid were Wilhelm is the dont touch me/get the fark out of my space kid KWIM?? so in a way yes...M man is showing true traits of aspys
Ithat something get's sorted quickly for you guy's...friggen rollercoaster crap!!!!
*maz passes flaggon over to Lu*
Registered User
Hugs Lu, the aspy boy in my class does heaps of those things too which confuses me, he doesn't even have any obsessions.
Riley has been throwing hysterical tanties where he punches DD2 if things don't go his way, he is fine with everyone else except her
The OT got him to eat 2 baked beans today but when we got home he siad he wasn't eating them again and ate mashed potato for dinner and refused even chicken.
Pass me the bourbon too- between dealing with my full on sensory seeking aspy at school then coming home to DS I am at the end of my rope.
BellyBelly Member
Go with your gut. You know your child better then the "single serve" psychologists (a bit of a Fight Club reference there but you know what I mean). Being interested in people isn't an instant autism rule out. My daughter used to do a similar thing. Some kids on the spectrum learn everything there is about space, or dinosaurs etc. My DD's tick was collecting information about people - this is why she's a PPD-NOS rather than straight out aspergers. The thing is, she didn't actually CARE about the people themselves, she just wanted to know the details so she catalogue them. What's your name? What are you doing? - Basically, narrate your life... It used to drive me balmy! Her biggest problem ( and still is) is a lack of discrimination. She will go up to ANYONE. Engage with ANYONE. Wants to talk to ANYONE. Wants to show affection to ANYONE - including wanting to give the repair man she's only met five minutes ago a kiss and cuddle goodbye - scary. Understanding social boundaries is also about being discriminatory. The thing I've personally found through speaking with other parents and personal experience is that a lot of autistic kids need a lot of help understanding the idea of "degree". To them it's either all or nothing, black or white, full or empty. It's all about RULES. If this is wrong then the complete opposite must be right...
Is he discriminating between who he approaches and who he doesn't? Is the interest he shows in the people themselves or is he following a script? Does he actually want to get to know them, is he looking for a connection? Or is this a new tick where he's just collecting information? This is the fundamental question.
Last edited by Yeddi; August 23rd, 2010 at 08:13 PM.
Lucy in the sky with diamonds.
*Lulu grabs the flagon, sinks the lot and passes around the Bourbon.
Further points -
*we raced through the dx to beat the clock for funding. Dx psych wasn't entirely happy with concrete aspy dx and did mention PDD-NOS and shades of other bits but god love her pushed it through for the $$$ and therefore extra help with intervention.
*ODD was something I did research, in fact before Aspergers. ADHD didn't even want to consider because of the constant mentions of medication. He really does ping off the walls though.
*He has not rated very high on the sensory tests either. After all that crap with the other stupid OT, a proper Autism-y OT has come to this conclusion. It's still there though.
I don't think he is ticking things off (totally get what you mean RE), he seems to really be looking for connections lately. There is to AND fro. When on form he is charming. He engages people right back - when he approched the snake people, apparently he did it with such a smile they all grabbed him and gave him head noogies and he laughed his butt off.
Jury isn't out either way but the ODD has always been at the back of my mind.
Registered User
Had another minor argument today ... this is about a thermometer that remembers minimum and maximum temperatures. To clear the memory, you press reset. Pressing min (or max) twice returns you to the ordinary temperature.
"Can I press the min button?"
"Er, yes ..."
"It says zero!"
"That was last night's minimum. Press the reset button so we can find out tonight's"
"I pressed min again! See, it says six again!"
"That's just the current temperature, press reset"
"I already pressed min!"
"Can you press the reset button then?"
"But I already pressed min!!!!"
Ugh. I just took it off her and did it for her and showed her that now the min, max and normal temperatures were all 'six'.
Lucy in the sky with diamonds.
good o - then next time she wants to press stuff, ask her which button does what...
Maz, I don't mind the labels as long as we have access to help and early intervention.
The best thing about it all is the fact I have got this funding. Without it I would not have been able to access the people that are helping me. Oh yes, I know my son better than anyone and we share a certain brainspace - but these people know about brain function and neuroplasticity in ways that I don't. These are the people that have a passion for the inner workings of the mind and have studied it for years, done stats, research and observations on many more children than just mine.
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