Christy love - NEVER be sorry for venting, OK? That's what we're here for and we're just sorry that there's a need to vent in the first place. I hope things pick up for you all.
What you said about her doing everything she could do remain 'high' resonated with me though - E has had a really nasty flu all week which meant he stayed home from EI. Yesterday he started recovering, and was at that stage of feeling well enough to be bored and cranky, but not well enough to focus on anything constructive. Most of the day was spent with him throwing things around the house (and occasionally hitting myself or his sister with them, randomly though, not deliberately) and generally being horrendous. I'll admit that I lost it at him after getting clocked with his wooden abacus - and had to put him in his room until I calmed down enough to deal with him losing at him. Don't feel proud of myself for losing it but there comes a point, right? I'd been doing so well and staying so patient with him, but a week of no sleep and no breaks really took it out of me.
Anyway, what you said Christy makes a lot of sense, because he was quite determinedly working himself up all day. By end of day he was frightful. Fortunately he slept well and has been good this morning, but was working up again - DP has taken him for a drive to see if he'll go to sleep. But I'm not sure how to handle him when he's so determined to push my (and his own) buttons.
Christy- How are you going? I hope things have improved since that day. It is just so tough.
I came across agood iphone app. It is called the Time Timer. It is $4.95, and is basically a timer clock, but very visual so that kids can see how much time they have left. we are using it for J, so that he has to participate in activity for a certain length of time, and he can clearly see how much time he has left.
Time timers are awesome, Sue Larkey recommends them for school kids with ASD too.
Is anyone else tired of the constant whirl of OT and speech ? I feel like I am on a roller coaster some days, I need a couple of days off a week just to do all Riley's speech etc- sadly that is not possible .
I hear you. It seems to be appointment after appointment. Then there is the practising what they are learning in Sp and OT, plus all the other appts...
We also have a time timer clock here that they have now purchased one at childcare that they are using very successfully with J there. $50 though so not cheap
Oooh yeah, I hear ya. I did over 250ks one week. We had 3-4 appointments a week for a long time, basically a full time job with the homeschooling and home therapy.
The social skills group has just finished and now I have an OT that comes to our place and that has eased things a bit........but now I'm running DS to school and back in hour blocks. I'm constantly moving, constantly!
However all this stuff has been working because he is going BRILLIANTLY at school! We started with 30 mins per day, then an hour and as of next week he will go for an entire morning. He is happy to read with the aide and has started doing a little work in the classroom! I'm spinning with happiness. He tears around playing football at recess with all the boys, has made friends and the teacher was telling me all the kids ask where he is and fight to play with him!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
He is so proud of himself. We know there will be a reversal at some stage, but progress is progress.
It's very tiring and it IS a rollercoaster. xoxoxo
Been a bit absent but there is a whole heap going on at the moment and I am just keeping my head above water really.
Chilly has been suspended again. He goes back today but its not a great start. Last week he was in a fight nearly every day and then on monday he refused to follow a teachers directions and swore at him so they suspended him..... *headdesk* Poor DH is dealing with this drama.
We had an appt at the school for Princess on tuesday. They have moved her into a support unit class, which is great and I know its good for her, and I know its his job to explain it all to us, but I could have done without being told my DD was being put in a class for children with mild intellectual disabilities. I know one day soon we are going to have to face the facts on *something*.. just not sure what it is. And not really all that sure that either of us are ready to hear it.
Been trying to work out where it all went wrong. Where I stuffed up so many times. How I kept getting it wrong and then so very right for bunny. I realised today that Bunny was the only pregnancy where the HG was diagnosed and managed. Could this be because of the HG? I had it in the most extreme way when pg with princess. Lost a good 30-40 kgs. Is that possible? I can't seem to find ANY information on the outcomes for children when the mum had HG. Can find plenty of all the crap that can go wrong for me... figures.
BR. You didn't stuff anything up. These things are sometimes out of our control.
And boy don't I know that one today. Freakin over it. DP's on late shifts all week, and won't get home until 9:30 each night. Neither kid slept all weekend, and this morning's meltdown (one of many) resulted in Euan throwing his wooden chair which landed on my big toe - if it's not broken it bloody well feels like it. I'm just getting really over it. He's been doing really really well (he's been doing wees on the toilet for the first time ever, he's been singing songs the whole way through - big, big stuff for him), but one little thing goes out of alignment for him and the switch is sudden. We try to deal with it calmly and consistently, but it's bloody hard when DP and I are actually physically getting hurt. Kinda embarrassing really, getting beaten up by a three year old. And he doesn't realise, or have the capacity to realise that's what's happening. Sure, when he hurt my foot today he realised something was wrong, but he can't make the connection, and to be honest, when he's in meltdown mode it's so internal, you could drop a bomb next to him and he wouldn't notice. I got a comment that 'he's got to learn that he can't throw' - well duh! Really? No, we just pat him on the head and tell him he's a good boy and give him a freaking ice-cream whenever he starts flinging objects around the room. But there's a big, big world of difference between teaching him (or trying to teach him) that something isn't appropriate, we can model the right behaviour and do all of the right things, but short of cutting his bloody arms off so that he can't throw things, we can't actually make him understand this, let alone give him the ability to control his emotions and his response to them. That's going to take time - a lot of time. He's not even three for crying out loud.
Anyway, thanks for letting me vent this - sure doesn't change anything, doesn't make my toe hurt any less, won't make this week any less suck-full, but it makes me feel a little bit better. Sort of.
I hope things pick up for you all.
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