Thank you so much! I look forward to reading your journeys!!
It means a lot to read your post... I feel understood. Thank you. So glad to hear the early intervention helped!
I think my son and I have similar conditions as I had some of the same issues. I had a lot of early intervention and clearly it made a difference as I'm a normal adult (as normal as normal gets... what is normal huh?).
My H and I managed to talk better again and I'm just really looking forward to seeing a pediatrician and getting started now. At the moment, the idea of seeing progress and helping our son is giving me hope and it cheers me up again.
Brendan has regular hearing tests as he has poor hearing and ear health. We need to have two audiologists do the test, one sits outside the soundproof booth and does the actual testing the other is in the booth with us and distracts him and tries to keep his attention. The first 4ish (can't remember exactly, we've had too many!) tests were inconclusive, but they picked up fluid in the ears and the poor health, they also picked up that the drum itself wasn't responding well.
Early Intervention is definitely worth it. Without the last 3 years of speech and OT I'm certain Brendan would be a lot worse than he is now, especially his SPD.
I have been meaning to do this for a while. Just so I could lay it out. I feel like I am posting to no one though.. I know I am not and you ladies are just as awesome.. but damn I wish Lu was here to read it and tell me what she saw.
BellyBelly Life Member - Love all your MCN friends
Jun 2004
The Festival State
3,008
i'm hopping in here, as a maybe. Two people have suggested to me that bilby might have Sensory processing disorder or something like that. I don't know, but think i should have that idea checked out by a Occupational Therapist, to find out either way.
Many things, that i put down to quirks, apparently are signs of Sensory processing disorder. i have been looking at these things individually, not putting together the pattern.
i have no clue if it's even worth chasing up, but my inner voice says, what if it IS, and there are some answers to be had. so i'd better chase it up.
So i either might be a regular (if she DOES have it), or an embarrassed gatecrasher (if she DOENS"T have it), in which case, i will do a quick retreat and leave you all in peace.
cheers
It was strange, finding this thread, and seeing the posts by Lulu. God i wish she was still on this earth.
HA - Can't ever hold a candle to our Lulu, she's irreplaceable - but we will be here. It won't ever be the same, but it will be something.
Gigi - I read this thread and the previous one through last night and felt like she was still in the room with us.
If Bilby does have SPD (and remembering some of your posts when she was much littler she seemed to show some traits which, now I know more about it, could have been early indicators - I remember how hard it was to settle her as a baby and that she'd scream for hours - could have been a sensory thing? Euan was, and still is a bloody nightmare to settle and it's probably mostly sensory, we just haven't figured out exactly what yet), then early identification is going to help. No question about it. And if she's not, then it won't hurt either. So getting her checked out would be win/win. Ask for an OT to do a sensory profile. matey. Could also be that she has mild sensory issues and the recent changes in your lives have brought them to the fore. A friend of mine thinks her daughter may have mild SPD but it only ever manifests when there's big things going on - she noticed it most when they moved house. Euan's OT put it really well - we all have sensory issues to some degree, just that for the vast majority of people the threshold is much higher so it is generally manageable, but stress lowers the threshold.
I hope that you do end up as a (never be embarrassed) gate-crasher, but if not, you know we'll welcome you with open arms.
its not going to be the same in here any more is it
I commented to someone yesterday that having a spectrum kid second time round is easier...man what was i thinking!!!! We went to the water park last night and Tank screamed for an hour when we got home....I HATE the screaming!!!
Meow - im glad that our stories have been able to help you I should go back in there and post somemore
Gigi - best advice I was ever given, listen to your inner mama...if she's tellign you soemthing is wrong, then something is wrong.
I would have loved to spend more time chatting to Lulu in this thread. I'm not a very prominent member on the forum and I generally best get to know people in chatter threads I have joined so I'm sad not to have had more time chatting with her and receiving her guidance along with the rest of you. I'm really, really sad for the old-timers in this thread who have lost a dear friend. for you all.
I cancelled the hearing test and decided we can do that after the move when a pediatician to talk to about the results. Not much point with an inconclusive result otherwise. Good to hear how the test is done- thanks earlykids. Worried about the move now suse! I think my son has been worse since our baby was born so I'm sure an international move will really help Mostly not having his bed or his normal food is going to behard. He's an uber-fussy eater so it's stressing me a bit. People say it'll help him not be fussy but they don't understand. He just goes hungry and then goes mental due to low blood sugar if he doesn't get the foods he eats.
Good luck with the assessment Gigi. My son ticks more boxes for SPD than anything else so I think we'll be looking into that too. I guess even if that's not it then surely seeing a professional and getting some strategies can help still.
The screaming sounds really hard Maz. Hope today is calm!
So glad to hear the early intervention helped!
what was i thinking!!!! We went to the water park last night and Tank screamed for an hour when we got home....I HATE the screaming!!!
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