HA - Can't ever hold a candle to our Lulu, she's irreplaceable - but we will be here. It won't ever be the same, but it will be something.
Gigi - I read this thread and the previous one through last night and felt like she was still in the room with us.
If Bilby does have SPD (and remembering some of your posts when she was much littler she seemed to show some traits which, now I know more about it, could have been early indicators - I remember how hard it was to settle her as a baby and that she'd scream for hours - could have been a sensory thing? Euan was, and still is a bloody nightmare to settle and it's probably mostly sensory, we just haven't figured out exactly what yet), then early identification is going to help. No question about it. And if she's not, then it won't hurt either. So getting her checked out would be win/win. Ask for an OT to do a sensory profile. matey. Could also be that she has mild sensory issues and the recent changes in your lives have brought them to the fore. A friend of mine thinks her daughter may have mild SPD but it only ever manifests when there's big things going on - she noticed it most when they moved house. Euan's OT put it really well - we all have sensory issues to some degree, just that for the vast majority of people the threshold is much higher so it is generally manageable, but stress lowers the threshold.
I hope that you do end up as a (never be embarrassed) gate-crasher, but if not, you know we'll welcome you with open arms.
its not going to be the same in here any more is it
I commented to someone yesterday that having a spectrum kid second time round is easier...man what was i thinking!!!! We went to the water park last night and Tank screamed for an hour when we got home....I HATE the screaming!!!
Meow - im glad that our stories have been able to help you I should go back in there and post somemore
Gigi - best advice I was ever given, listen to your inner mama...if she's tellign you soemthing is wrong, then something is wrong.
I would have loved to spend more time chatting to Lulu in this thread. I'm not a very prominent member on the forum and I generally best get to know people in chatter threads I have joined so I'm sad not to have had more time chatting with her and receiving her guidance along with the rest of you. I'm really, really sad for the old-timers in this thread who have lost a dear friend. for you all.
I cancelled the hearing test and decided we can do that after the move when a pediatician to talk to about the results. Not much point with an inconclusive result otherwise. Good to hear how the test is done- thanks earlykids. Worried about the move now suse! I think my son has been worse since our baby was born so I'm sure an international move will really help Mostly not having his bed or his normal food is going to behard. He's an uber-fussy eater so it's stressing me a bit. People say it'll help him not be fussy but they don't understand. He just goes hungry and then goes mental due to low blood sugar if he doesn't get the foods he eats.
Good luck with the assessment Gigi. My son ticks more boxes for SPD than anything else so I think we'll be looking into that too. I guess even if that's not it then surely seeing a professional and getting some strategies can help still.
The screaming sounds really hard Maz. Hope today is calm!
Just got our speech pathologist assessment. It's amazing how much a simple sentence like "E's expressive communication is delayed for his age" can hurt
Argh all of those do hurt yes. I remember the first time I heard "abnormal".
Me, well I've gotta leave DD to get to Melbourne today. I find it so hard to cope in doing social stories with her to explain that I have to go and grieve Lucy. When I tried once she put her fingers in her ears and said no.
I explained that Cyclone's mum died of a broken heart. She understands that, but she doesn't understand how she is going to marry Cyclone without Lucy I cried but she really wants me to explain the logistics of it now.... I can't....
meow - you have a lot going on at the moment, don't you? DS was just diagnosed three weeks before DD was born, so I know how you feel in that respect. All of a sudden I worried how he was going to take it from a completely different perspective, and it was both better and worse than I expected. I guess that in terms of the move, all you can do is plan to make the transition as smooth as possible, know that there's likely to be meltdowns no matter what you do, get through them as best you can then come in here for tea (or vodka) and sympathy. The food issue would be stressful. Can you take a supply of some of his favourite foods with you? Or find out whether there are equivalents where you are going to be living (although spectrum kids are great at picking 'fakes', so this might not work too well)? I get that with the fussiness thing, so many people think that the 'eat it or don't eat anything' strategy works, but not with spectrum kids, they'll just not eat anything. Fortunately our DS is good with most food, his quirks tend to be texture rather than taste or colour related so I can work around that pretty easily, but when he does go through his rejection phases I nearly tear my hair out, because he's skin and bone.
And oh boy yes, the reports and the language they use can be a real kick in the teeth. And because they are technically worded there's nothing there to soften the blow, is there?
Whilst I'm in here, does anyone else have gut issues with their kids? I think I'm going to have to get E's gut checked out, or look into food intolerances, because his poo is just terrible. He generally poos 3-6 times a day, ranging from normal in texture, to what I describe as butt-vomit. Which is half digested, acidic smelling yeurk. Usually we get one of these a day. We've cut as much acidic food from his diet (tomatoes, kiwi fruit, grapes, he doesn't eat citrus, can't think of anything else), he does eat dairy but mostly yoghurt, he doesn't like milk to drink. I'm starting to worry that we're going to have to go down the GFCF path, poor kid won't have anything left to eat. But he doesn't seem to react specifically to either gluten or casein. It's really got me stumped, and I know that because it's so random, it's not going to be a cut and dried answer. Sometimes it's linked to behaviour, but not always. Dunno?
And Christy, more I wish... I wish this wasn't happening.
Suse we have heaps of food issues. I went to a allergist and yep Matilda is allergic to one of the proteins in cows milk. She's not out grown that. She's also intolerant to salicalytes. I found getting a good probiotic has helped her. I have to add it to her chocolate rice milk, but whatever... it gets it in her. She didn't react to all three different sorts of tests to gluten. She did show that she has an intolerance to oats though.... I have a list of her intolerances and milk. I feel she's grown out of her oat intolerance, but I don't overdo it just in case.
Okay, I said I was going earlier and I mean it, my bus leaves in 20 minutes...
Can't ever hold a candle to our Lulu, she's irreplaceable - but we will be here. It won't ever be the same, but it will be something.
what was i thinking!!!! We went to the water park last night and Tank screamed for an hour when we got home....I HATE the screaming!!!
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