Aspergers/Autism/Sensory Integration Chatter #4

[Early Kids]

Freya, you def belong in here Good luck with the griffiths testing, I find the assessments quite interesting and it's good to know where the kiddos sit with development.

We will start seeing two sets of therapists soon, we will keep our local ones (allied health) which are focussing on his sensory processing disorder and those issues and we will start seeing some in Perth for the ASD issues (my priority for this is currently the violence... he head butted me in the face and kicked Tristan during our Autism Advisor meeting and I was soooo embarrassed! )

Hope everyone has a good day. Better go DS2 is crying

[lilima]

Freya - I really hope you get some concrete answers soon. It is so hard living in limbo.

Early Kids - I am sure the autism advisors have seen it all before and wouldn't have even batted an eyelid.

Did up some social stories for the return to activities. So far J doesn't really even want to read them as he ha said that he doesn't want to go back to kindy. Topped with E starting CC at the same time, I have a feeling I wil lbe dropping off two howling kids

[meow]

Freya- you belong here more than I do so don't fret! I agree with Christy that these issues are all similar and we can help each other. Lord knows reading all your posts helps me. Though my son's similarities to already diagnosed children is scary at times. Oh and I hear you with the guilt. I keep thinking I have let my son watch too much TV, haven't talked to him enough, rotted his brain My H and sister tell me otherwise but in my dark moments I wallow on these points. I think there's a chicken and the egg problem too... I used to try and engage my son so much more but after constant disinterest/comprehension I guess I eventually stopped doing as much. He jsut doesn't do any craft, or dramatic play, or games, etc etc. I need professional advice to get us back on track though- I'm wondering if I should be pushing some interest in these areas more?

We decided 2 days ago to go gluten and dairy free for a few weeks and see what happens. He found a clix biscuit and had half ofit today though. And wont touch the gluten/dairy free clix style biscuits I had bought.

Meltdowns out and about are getting worse- he loses it when we go to someone's house and I've been trying to visit friends to say goodbye so this week hasn't been much fun. Oh god the 24 hour plane trip is going to be hell!

Christy- we're moving to Seattle. I looked up squashed sultana biccies and couldn't find any on the online supermarket shopping and found a blogpost the US used to import UK squashed raisin biccies but doesn't anymore. I have a recipe to make them- which may be good if we find gluten or dairy need to be cut out anyway. Thanks for mentioning Matilda's reaction to milk in cake, you made me realise my son has never been dairy free as even when we cut milk & cheese he was having dairy in biscuits.

Sorry- no advice on sibling issues!

All the best with testing Freya, and with new therapists early kids!

[christy]

Girls, do you mind if I print off these threads and highlight Lu's posts and mail them to nick, Cyclone's dad? I was just taking out all of Lu's posts to print off, but I think he would like to read this and it could help in his journey.

[Early Kids]

I don't mind mine being printed, LuLu was such an awesome help and inspiration to me, she was always there when I needed questions answered (not just in here either)

[tan32]

Christy I don't have a problem, if it helps cyclone and Nick then I am all for it.

I have to say yesterday things came to a crashing head for me. I was struggling to deal with the sibling issues with Hamish and Lachie. The constant screaming was driving me to the brink. Hamish has massive sensory issues. He also has sensitive skin and therefore does not like to be touched and of course Lachlan being 2 just wants to touch. If lachie squeals or screams Hamish hates it , so it just goes on and on non stop from the minute they wake till one of them goes to sleep or leaves the house.
Then of course I have my older daughter to deal with as well, although she is a massive help to me.
Sometimes the stress of running a household drives me crazy let alone when you add an aspy in the mix.
In one way I am looking forward to him starting school but then I know its going to bring a whole new level of meltdowns, a new teacher, different class room, different area of school and different rules and kids are going to mean loads of time at the school I feel.
Autism SA have told me they will go into school on the 2nd week, i just hope they do as this is when it will hit and hit hard.
We are also going camping with friends for a week and I just know we are going to have a few problems, their daughters are very in your face something of course Hamish hates. Argh I am going to have to try and set up a cool down stay away area. Problem is the parents don't get it. Actually I am at the point where I don't care what they think he is my priority they can deal with it.

[Early Kids]

you said it perfectly, it's their problem not yours (that they don't 'get' it). We took our boys camping and Brendan had his own little spot he could go to and he loved it. Thankfully the only kids were mine though x

I hear you with the sibling thing too, my two clash too. Tristan is cuddly and Brendan will only accept a cuddle if it is on his terms, it causes a lot of issues for us Especially as Brendan is the one seen as "naughty".

I hope you have an enjoyable time away

[meow]

I had SPD as a child and no-one was able to pick me up. I was lucky I just had a quiet, older sister so we didn't have sibling issues but when I was 2 my older cousin picked me up despite being told not to and I arched out of her arms, hit my head on the coffee table and still have the scar on my forehead to show for it!

I agree you can't worry about pleasing ignorant people tan. If they can't managa to try and understand then that's their loss.

[Early Kids]

I had SPD as a child and no-one was able to pick me up. I was lucky I just had a quiet, older sister so we didn't have sibling issues but when I was 2 my older cousin picked me up despite being told not to and I arched out of her arms, hit my head on the coffee table and still have the scar on my forehead to show for it!

Ouch!!! If you don't mind me asking, do you still have issues (with the SPD) now or is it something that's under control?

[Freya]

I dont mind at all Christy, anything for Cyclone!

[suse]

Of course Christy - anything to help.