thread: Aspergers/Autism/Sensory Integration Chatter #4

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  1. #1
    BellyBelly Member

    Oct 2004
    Cairns QLD
    5,471

    just need to write it down. I am a total mess. Evan is at it again. I seriously don't think I have in me to do this.

    eta- back to expand a bit...
    We have had at least every day to some degree a melt down. If we go out, there is a melt down. If we stay home, there is a melt down. I can't handle it. Seriously I feel like if I get in the car I wont come back. Todays episode went on for over an hour. His room is completely trashed, every draw is thrown around the room, both mattresses off the bunks are on the floor. He threw a number of items out the front door. Continuously screaming at me & DH to get out of the house. I spent the entire time of it crying. Trying to vacuum the floor & just ignore it. I can not deal with it. I don't know how to deal with it, I feel horrible & like I should just leave.
    What started it? I said no more hiding eggs around the back yard.
    I just have no clue how I am going to handle this if it continues to escalate the way it has been over the last few days.

  2. #2
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    FJ Its very very hard, and yes we all go through the roller coaster.... with M school holidays is very hard, and always the added issue of anticipation is bad. Whenever some holiday that she loves, or a party or anything will encounter a meltdown. Mainly because her stress levels increase from anticipation, but in reaction to this, she can't handle changes to routine or changes in anything.... so school holidays, public holidays, changes, sugar.... etc etc etc... make life horrible. She had 3 meltdowns today. 3. I can't imagine going through that with a newborn...

    I imagine that Evan is very frustrated and confused with life. Maybe each morning if you give him an ideal routine, and make sure you say that it does all revolve around needs of the entire family.... then remind him what is happening next? Also, if he starts feeling stressed, or you see him getting frustrated, you can always do some OT things...

    Core work calms. Breathing calms. Make him blow up balloons, or do wheelbarrows, or sit ups, or squash him between two large cushions. Something to make him work that core and in turn help him calm down. I would do those things even when he isn't worked up, in order to help him calm down, put the fire out before the storm.

  3. #3
    BellyBelly Member
    Add Yeddi on Facebook

    Aug 2010
    In a library somewhere...
    788

    FJ - I'm sorry you're having a hard time at the moment. Hopefully you'll get a diagnosis and the help you need soon.

    I found an interesting video that I thought I'd share.

    Autism Now: Robert MacNeil Shares Grandson Nick's Story | PBS NewsHour | April 18, 2011 | PBS

  4. #4
    BellyBelly Member

    Oct 2004
    Cairns QLD
    5,471

    Thank you. I think i did well tonight. It was starting, I was in shower & came out to the couch on the otherside of lounge room. So I got dressed & asked if he would like to go for a walk with me & Rohan & then maybe he would like to make pancakes for dinner. So he came, pushed the pram there & then carried on (in a good way ithink :/) about people parking on the side of the road & not driveways. Now he is shaking up the pancake mix. So far so good.

  5. #5
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    You did really well! I think pushing the pram... and shaking the pancake mix would be great sensory input! How did he go after that?

  6. #6
    BellyBelly Member

    Oct 2004
    Cairns QLD
    5,471

    Kinda just delayed it to be honest. Wasn't as bad as it could have be. I need to work out how to take it it away with out more stimulation. The more you do with him to try & get rid of the "energy" the worst is it.. Had a friend of DH's here yesterday & his wife was saying about taking him for a walk/run around the block etc to tire him out. BUT thats the problem. He isn't tired he is over stimulated. So more stimulation is making it worse. BUT he can't just sit either. he wants to do stuff.
    But Its like a rubber band being twisted. It builds & builds & the more you do to relieve just winds the rubber band tighter & then eventually it explodes. I don't know how to unwind it slowly.

  7. #7
    Registered User

    Jan 2008
    Just Coasting
    1,794

    Hi, this thread has been quiet!

    Just thought I'd pop in for a quick update. We are finally getting the diagnosis process underway.

    We had some questionnaires sent out to us from CDABS (child development and behavioural service) for me to fill in and also one for daycare to fill in. In the form I completed it definately showed that DD has sensory issues. Some of the questions just described her so much! DH has been burying his head in the sand with the whole issue saying I'm over-reacting and that DD is just a normal 3y.o. So I think he got a bit of a shock when he saw what DD's daycare teachers had said in their questionnaire. I think he now realises it's not just "me" and that getting DD assessed asap is only going to benefit her (and all of us for that matter). I'm so relieved, i was really struggling with having to persue this on my own IYKWIM.

    So anyway, we had to send the completed questionnaires plus a referal from a GP back to CDABS and apparently it's about a 4 month wait to see this specific paed and OT who specialise in assessing children who are suspected of being on the spectrum.

    I will keep you posted on how it goes.

    In the meantime, we're just plodding on.


    PS: anyone else have any issues with the change in ABC2's new logo. They bought out a new one this week and DD was very upset. She wanted the old logo back.

    PPS: CDABS is a QLD Health Service on Gold Coast. ANyone who is interrested here is some info http://www.health.qld.gov.au/goldcoa...vices/CDBS.asp