MMMM we waited 18 months to get into our hospital for assessments. Apparently they wouldn't even accept children before 4yrs old up here at the Mater Childrens Behavioural Unit.
Matilda didn't ever handle playgroup well... we always had heaps of screaming and tantrums during and afterwards. It wasn't worth it for us after a year of sticking with it.
Thanks for the explanation It is hard waiting for the diagnosis (I totally get the needing to know) but I also thing that a bit of extra time could help. It's amazing the difference 6 months can make to some behavioral traits. Some things were less dominant in Mason but then as he was more vocal they were able to chat to him and be more thorough. ie not call it as being a slower to mature issue IYKWIM as that is what they thought the problem was when he was 3-4. For that reason we actually let it go and see if that was indeed the case before having the full CARS testing done.
Christy Xander has low muscle tone also - which I thought meant he didn't get enough exercise (which is not the case :-) but it means their muscles don't work in unison (ie one stretch while the other contracts) high muscle tone is where they both contract at the same time resulting in tight muscles and spasicity (such a horrible word) low muscle tone means they both relax so they often hyper extend and have an off gait and have difficulty coordinating movement. Xanders OT works on this a lot and I'm proud to say we can down cathc a ball! Not 100% but getting better every day.
Kidsarelife - Xander had a prelim diag of PDD until we got some more info. welcome and look forward to chatting
Maz - I never even considered the full moon! wow
We have Xanders speech assessment on Wed, we have waited nearly a year and now... I don't know if it's even worth it? His speech is much better now then it was but maybe they can help with the conversation part of his speech as well??? ideas
He has had a yucky couple of days back at school lots of bullying going on - gosh I hate sending him to school sometimes! Even though I'm a teacher and I know you can't be everywhere I still keep thinking - where were the teachers! His afterschool care is the worst, they just don't know how to deal with the bigger kids???
On the upside I'm am going to Sue Larky's seminar this coming Tuesday on Teaching strategies and behaviour support, really looking forward to it
oh I had a big moment today.... My plane home was cancelled & I told Matilda I would be picking her up from montessori. I was standing in line to find out what they were doing and I burst into tears. All I could think about was how upset she would get.... and how frustrated she gets at the thought of change. I felt so bad for letting her down. I was supposed to be home at 1.30pm, plenty of time to pick her up at 3.30, but the new flight got me in at 3.30 and I would have had to take a taxi and I may not have gotten there by the time I had too. So I was sad. One of the clerks said "are you okay?" and I said "no, I'm not. My child may have a form of Autism and I told her I would pick her up, and now I can't!!! (I didn't want to explain that it probably wasn't Autism, but I didn't want to have that conversation then) and she said "Run... to the next terminal, the flight leaves in 20 minutes!!" So I ran and got onto another flight!
oh oney - I hope that your tears were gone when you picked Matilda up today. Big hugs babe...and see I know as horrbile as it seem's...we do have little perks of having a child tahts is special
Im gonna have alot of trouble with WIlhelm next week. he normally goes to scholl monday to thrusday with fridays off btu next week his aid is having the monday off and working the friday and she asked if we could change his day off. WELL he over heard us talking and he cracked up big time.
'Monday is NOT my day off - friday is mummy'
'But you can stay home with me on monday and go on friday instead'
'NO! i dont want to....no school friday'
So it looks like tears for me next week ...and just when my migraine from him the week before had gone and ive jsut gotten him to eat again after 2 weeks of not. Dame it!
could you cope with him being home 2 days? So missing school on Friday as well as Monday? I know its hard, but maybe easier for his brain to handle?
You know Maz, it was like I could say "something is wrong with my daughter" and the doors opened... where if I hadn't said anything, I would have missed it. And the end of the world would have happened. It was hard enough being away overnight.
I could handle him home but we want to try and get him use to full time school cause he'll be in year 1 next year and thats a big goal for us. I just hate upsetting him and him being hurt by the change.
Andyes I agree....drop the - autisum word and people give yo a look of pity and help you. I found it very hard to say in the early years but once I noticed it helped Wilhelm then I dropped it when needed.
eg when I had Vyolett - Wilhelm would come to the hospital to see us and could only stay 1/2 an hour cause I had to share a room. He was a mess for a month afterwards and **** it made things so hard for me at home.
When I had Mateauz I told them that I had a child with autisum and that he didnt handle me sharing and that I couldnt BF my daughter were I wanted to BF Mateauz...bang single..PRIVATE room straight away. In the end...one very happy Wilhelm until we were transferred to Royal Childrens for that 3 weeks.
Went to an awesome seminar run by Sue Larky and it was great. Got heaps of books and fidgets for Xander and my kids at school including a CD with symbols to use on our timetable. Can't wait to play and Xanders school are interested in buying some stuff too like a learn to play CD where you print out pictures to teach them how to play step by step. All very exciting.
Christy hope everything was OK with your flight. I too started dropping the autism word as DS was being diagnoised. As he was dx PDD at first I would say he had a form of autism particularly when I was getting dirty looks from old ladies at the supermarket while i was holding DS down while he screamed and punched me :-) It does help and in stressful situations I wish DS had a shirt which say "I have autism"
we are off to his speech pathology assessment tomorrow although his speech has improved out of sight since last year when we made the appointment I figured it was still worth going just to add to the profile. he is a bit anxious about it as we have an excusion in the morning as well but the figets are coming in handy tonight. He is sitting on his vibrating cushion with a squishy ball at the moment :-)
Maz - hope your week settles down, what about some social stories for the next couple of days to help him adjust??? Hey did I miss an announcement? Are you pg???
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It is hard waiting for the diagnosis (I totally get the needing to know) but I also thing that a bit of extra time could help. It's amazing the difference 6 months can make to some behavioral traits. Some things were less dominant in Mason but then as he was more vocal they were able to chat to him and be more thorough. ie not call it as being a slower to mature issue IYKWIM as that is what they thought the problem was when he was 3-4. For that reason we actually let it go and see if that was indeed the case before having the full CARS testing done.
Xander has low muscle tone also - which I thought meant he didn't get enough exercise (which is not the case :-) but it means their muscles don't work in unison (ie one stretch while the other contracts) high muscle tone is where they both contract at the same time resulting in tight muscles and spasicity (such a horrible word) low muscle tone means they both relax so they often hyper extend and have an off gait and have difficulty coordinating movement. Xanders OT works on this a lot and I'm proud to say we can down cathc a ball! Not 100% but getting better every day.
...and just when my migraine from him the week before had gone and ive jsut gotten him to eat again after 2 weeks of not. Dame it!
could you cope with him being home 2 days? So missing school on Friday as well as Monday? I know its hard, but maybe easier for his brain to handle?
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