K's appointment was next Friday, it has been postponed to the following week. I have moved heaven and earth to make sure i have made the appointment for the right day, and they ring up just to shuffle me around.
LOL we are nearing the end of Autism Awareness Month and I've been amazed by how many people are totally unaware.
However, we went to church last week and Matilda lost it, had a complete melt down. Pete carried her out to the creche which wasn't in use at that time. She was thrashing around physically and out of control. She kept trying to run... and I was trying to hold onto her tightly and she scratched my eye, then DH took over and she slipped out. A mum with a boy on the spectrum somewhere came and grabbed her and walked her outside in a bear hug. I caught my breath, and DH took care of Jovie. Then as I was about to walk out another mum who happens to be an OT who works with our OT came in and took over and started getting her into the swings etc... so I sat down for a few minutes and tried not to be terribly horrified.... So I hear her calming down so I run in and grab her in a huge bear hug and Matilda was crying... she said to me "Mummy I need some crunchy noodles" and it was exactly what she needed.
The OT said to me "Whew... I have never been with a child who is in full meltdown... never..... and this was intense, I'm so glad you let me help. I think you and Pete are amazing parents" She also said "I've read about things like this, I've studied things like this, and Ive heard parents talk about this, but I've never seen it... or been there through it"
I've never had someone say to me that I am an amazing parent at the end of a melt down, I've only been judged before for my crap parenting... and here was someone who told me I was amazing! Someone who has studied it, so I hope she's gained some more wisdom in dealing with these super kids now. I hope she's gained a life lesson as well. And I am eternally grateful for boosting my parenting esteem......
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that sucks
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