K's appointment was next Friday, it has been postponed to the following week. I have moved heaven and earth to make sure i have made the appointment for the right day, and they ring up just to shuffle me around.
LOL we are nearing the end of Autism Awareness Month and I've been amazed by how many people are totally unaware.
However, we went to church last week and Matilda lost it, had a complete melt down. Pete carried her out to the creche which wasn't in use at that time. She was thrashing around physically and out of control. She kept trying to run... and I was trying to hold onto her tightly and she scratched my eye, then DH took over and she slipped out. A mum with a boy on the spectrum somewhere came and grabbed her and walked her outside in a bear hug. I caught my breath, and DH took care of Jovie. Then as I was about to walk out another mum who happens to be an OT who works with our OT came in and took over and started getting her into the swings etc... so I sat down for a few minutes and tried not to be terribly horrified.... So I hear her calming down so I run in and grab her in a huge bear hug and Matilda was crying... she said to me "Mummy I need some crunchy noodles" and it was exactly what she needed.
The OT said to me "Whew... I have never been with a child who is in full meltdown... never..... and this was intense, I'm so glad you let me help. I think you and Pete are amazing parents" She also said "I've read about things like this, I've studied things like this, and Ive heard parents talk about this, but I've never seen it... or been there through it"
I've never had someone say to me that I am an amazing parent at the end of a melt down, I've only been judged before for my crap parenting... and here was someone who told me I was amazing! Someone who has studied it, so I hope she's gained some more wisdom in dealing with these super kids now. I hope she's gained a life lesson as well. And I am eternally grateful for boosting my parenting esteem......
Christy - what a huge day for you and what a bright and shining light in the midst of it all to have that validation to confirm what all of here already know - you are a fantastic mum!!!
How enlightening that so many of these people that work with our kids have never witnised what we live with each day. It really explains why they say and do the things they do.
Manta ray - good luck with the assessments next week!
Xander spent part of the day yesterday under a desk for calling out in class - God how I hate his teacher! He can't understand why he can't say all the answers when he knows them and they are right. It frustrates me so much when his teacher has so much at her disposal in terms of people wanting to help, resources and ideas and yet she won't participate. Still trying to write "the letter" to the families in his class - a task made harder by the fact that his teacher would prefer us to keep it as short as possible (about a third of a page???)
OH bloody Nora Chirsty hon im sitting here with tears stinging my eye's.....poor sausage...thank god for your angels to have been there
Must have been the weekend for it :rolleye:
We had a family break at the inlaws on the weekend....all was ok.....Indian lunch which I knew W would touch...SIL telling me it was alirght as she had bags of chips in the boot of her car for him..(WTF thats NOT lunch) but I drove to the supermarket and got bread, devon and cheese for sanga's for him and his favourite, milo yogurts.
Then on the sunday, SIL comes to babysit other SIL (she is disabled) and it was just to much for W. He had such a tummy ache and over everything. Nephew can be nasty when we are not in ear shot (eg non sharing and narky) so W gets more upset......thank god we went to Sammi's for lunch and it helped .....hench why the woman will play a very important role in his life soon.
Ive been giving him daily fixes of incremin again which has helped settle him down but OMG he thinks swearing is funny...and fart jokes :rolleye: I do to but how can I tell him their not for school
MR - YAY for J's testing starting......hope that it will bring some light and help for you guys
Sarah - WTF!!!!!!! have you gone to the principal about this moron???? Can you get him change dout of her class? What a wench!!!!!
Thank god tomorrow is friday sleepin saturday morning for him
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that sucks
.....hench why the woman will play a very important role in his life soon.
sleepin saturday morning for him
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