brachial plexus palsy or erb's palsy?

[Captain]

Hi Alisha
Sorry that you have to be going through this. It is so hard having to watch the poor little ones going through such a difficult surgery. It's sounds like the same surgery that DD had. Don't panic yet if Cody doesn't haven't any movement. DD didn't have her arm out of the sling for 4 weeks. She took another couple of months just to get back to where she was before the surgery. It's been nearly 2 years now and we are still seeing improvements.
As for what we can do to stop it, I really think it comes down to awareness. It seems there are many Dr's who just don't know how to handle shoulder dystocia.
Keep us updated on how Cody's going and I'm here if you need to chat.

[Aylilth]

1st off hello,

I know this is an old thread but had to post.

I have 3 kids none of them have erb's palsy...........but I do.

I was born in 1975 and had shoulder dystocia, which turned into erb's. I have total feeling in my arm but do not have full rotation.

I guess for me being born so long ago there was no surgery for me, I just wore the brace as a child. By the time I had enquired about trying to fix it in my teens was too late. The dr's said it was possible but the recovery would have been years and I woulda been in massive pain so not worth it.

I just felt the need to post as somebody who has it but grew up with it.
I'm up to chat if anyone has questions.

[Captain]

Hi Aylilth

Thanks for posting, I've never really spoken to anyone who grew up with Erb's. I guess my biggest question is, does your arm ever cause you pain? It's hard because sometimes Danielle mentions pain, but then can't elaborate so I don't know how she is feeling. If it does cause pain, what helps?

[*EmJa*]

Thanks for sharing ur story Aylilth, i guess my only question is when u were growing up did ur arm effect u playing sports?

Hi Tenille, hope ur all well