If it's only just being diagnosed I image you have heaps to digest. There are no support groups as such in Perth. I was going to organise a get together, but it kind of fell through when I was pg with DD2 and I've lost contact with a lot of the mums. Dr Allison isn't much better than Page when it comes to answers. They both did the surgery on Danielle. He is good though, just make sure you take a list of your questions and keep asking. Are they saying no to the surgery because of his age? There are a few little ones around with erbs, but most heal quite well in the first year only a small percent have long term problems. I'm on a time limit atm (DH is waiting for me) but I will email you later and we can organise to meet up.
Hi Jaybee, sorry to hear ur going through this, its all abit overwhelming to deal with at first. i had never heard of erbs palsy till my DD was born. she is 2.5yrs now and is going really well now, we also see Dr Page, as Tenille said make sure u ask alot of questions cos he isnt a big talker!!
we r probably quiet lucky with DD as she hasnt had any surgery yet and at our last visit we were told if she keeps going the way she is now there will be no need for any surgery and we wont have to go back for any appts.
wishing u all the best and we are here if u need a chat
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