If it's only just being diagnosed I image you have heaps to digest. There are no support groups as such in Perth. I was going to organise a get together, but it kind of fell through when I was pg with DD2 and I've lost contact with a lot of the mums. Dr Allison isn't much better than Page when it comes to answers. They both did the surgery on Danielle. He is good though, just make sure you take a list of your questions and keep asking. Are they saying no to the surgery because of his age? There are a few little ones around with erbs, but most heal quite well in the first year only a small percent have long term problems. I'm on a time limit atm (DH is waiting for me) but I will email you later and we can organise to meet up.