At the moment we don't have an official diagnosis. DD has had recurrent aspiration Pneumonia. This is the most serious problem we have encounted. It was apparent pretty much from birth. To start with she didn't gain weight. It took 3weeks to get back to her birth weight with comps of EMB and formala until I could build my supply back up. Then she begun coughing. The coughing started with feeds but got much much worse over a period of weeks. DD was admitted to paeds at 8weeks to try and figure out what was going on. At this stage they thought it was whooping cough. She deteriorated further and then it was finally picked up she had pneumonia which was from aspirating vomit. She has been vomiting several times with every feed since my milk came in. She has been seeing a Paed since 8weeks and until she got pneumonia again and then again her problems have been put down to whooping cough. They finally believe me she does not have whooping cough as the cough completely vanishes as soon as the pneumonia is fixed. Once the antibiotics stop the chest infection returns. AT every feed she gulps, gags, coughs, holds her breath. All signs of reflux except she is not unsettles. She is very windy down below although it wakes her she doesn't do the typical screaming you see a baby in pain do.

I noticed fluffy, frothy poo as soon as it changed from mec. It also is either just froth or it looks like its full of strings. She almost constantly has a nappy rash. The paeds here aren't sure whats going on but the latest was perhaps a LI and have referred her to a Dr Er in Hurstville. Problem is we are 500kms away. We have an appointment but its 2months away. Reflux meds have not had any impact on DDs issues. I have given her S26 a few times just small amounts and she is obviously intolerant to this. She does get pain and projectile vomits but that doesn't start for hours after. I really thought it was reflux but now the paed thinks not and feels its an intolerance to lactose. Reading the above maybe it is an intolerance to cows milk (which would come through me)

Because we live in a rural area apart from the paeds there are no specialised paeds without going 500+kms. So thats where we are now. There is talk of doing a barium swollow but thats the only testing the have suggested apart from routine bloods she has had done which showed she was anemic. I would love to know what is going on.