I don't have much to offer as a parent but I just thought I'd pop in and say hi... I had a large cleft palate (not lip) and I'm fully functioning, successful individual now (not that you would expect otherwise )

It was years and years of ops (a lot to do also with the fact that my ears got messed up as well from missing piping and some other jaw issues). When it was 'over' was a bit odd. I didn't know what to do and felt I could turn into a hypochondriac just to keep seeing doctors as it did become a huge part of my life.

I've moved on from that now and feel very blessed by the experience I've had- it's made me a much richer, empathic person and I wouldn't change it for the world.

All the best to all of you and your gorgeous children. You sound like beautiful, caring parents