thread: Developmental Delay Support Group ~#2

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  1. #16
    kajolo Guest

    Hello,
    My name is Sarah and my Son Jordan has several underlying problems some of which have been diagnosed some which have not.
    Ill start from the begining,
    Jordan started having terriable outbursts when he was around 18months old, he would go out of his way to hurt him self on what ever he could, For the next 6 months this continued and somewhat got worse i thought prehaps it was just Terriable two's starting early.
    Come towards the end of 2006 when he was 2.5 years this is when i noticed that he was delayed in some area's and i started to get concerned. I was heavily pregnant with my son and he was just running me raggered.

    I contact Child and Youth Health and got a appointment for a assessment to be done, a lady came out to our home and assessed him She then made a referal for more Assessments.

    At the time of assesmment jordan was 3 years and 2 months old.
    To cut along storey short he has been diagnosed with the following
    - Learning Disorder/Delay
    -Speech Delay
    -Sensory disorder
    and a Language Disorder.

    He was also described as a extreamly hyperactive child, further assessments will need to be carried out when age appropriate to determine if there is a underlying behavioural issue.

    Basically the Pead said that he wont diagnose Jordan or tell me what they think it might possiably be until Jordan is 5 because of some of the traits/characteristics Jordan displays can be classed as the normal for pre-schoolers.

    We are currently seeing a Occupational Therapist and a Speech Pathologist.
    Jordan also has Conductive hearing loss in his left ear and a significant hearing loss in his right ear this could have contributed to the Speech delay.

    So i am doing as much research as i can, i am trying to do as much as i can to help my son learn and staying focused on activities.
    I am focusing on Structured craft play at the moment with him to help his Sensory skills.

    The reports of the assessments are so confronting for me, to see things things written about your baby in black and white.

    I have just Enrolled Jordy in Pre-Entry Kindy and he is now going to a ABC center and the benifits of him attending the Childcare center have been enormus!

    Are there any parents out there that could reccomend a good book for activities to help him learn.

    I would really like to stay in this group.
    Jordan starts Kindy on the 19th he goes one day a week for three hours, i am so excited and yet so nervous at the same time.
    He will continue this one day a week routine until he turns 4 in August.


    There are so many more things written in the reports he has issues with gross and fine motor skills and we will be seeing a physiotherapist on the 26th.

    Jordan is also entitled to get some one on one help through the kindy through Disabilty SA.

    Any advice/suggestion/information would be greatly appreciated

    Thankyou

    Sarah

    P.S I am terriably sorry if this is all over the place i am so nervous about talking/typing about these issues my son has it makes it so much more confronting but i really feel i could gain knowledge and support from this forum and that i could offer knowledge and support to other parents as well
    Last edited by kajolo; March 7th, 2008 at 01:16 PM. : Fix up typing errors

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