Developmental Delay Support Group ~#2

[Monchika]

Hi Donna,
I know what you are going through. We are at the start of having Mikey (3.5yrs) assessed. Our Paed appointment is on the 8th Oct and it has been such a long wait!
It is a great idea to write things down, especially triggers....this helps alot. I understand that you need some answers...that is exactly how I am feeling....I just want to know how to help Mikey cope better. Mikey is extremely intelligent and a gorgeous little boy....but his behavior is out of control....if he doesn't get his own way....he starts screaming and hitting and basically starts going into a rage. I just need to know how to control this so we have great outcomes for Mikey and for us. The road will be long.......but I am sure that happiness for us all is just around the corner

[donna]

We seem to have made quite a significant discovery. Not only is DD having absent seizures, she is having 100's a day. We have got her into an urgent neurologist appointment next Tuesday. It wasn't until I started watching her (I mean REALLY watching) that we noticed every stumble, every fall, everytime she dropped something followed one of these VERY brief little episodes. The physio from disablities services said last week that she not longer requires her services. That she had caught up with her gross motor development however she seems to have a lapse in concentration when she is doing balancing activities. It makes a bit more sense to us now. Has anyone else had anything to do with this issue. I have read that these types of seizure in very young childrem can have a significate impact on their development, especially language which is Caitlin greatest delay. Does anyone have anything they can share. Feel like I'm starting from scratch again, but for the first time I feel we could be one the right track. Epilepsy running through me husbands family. I suppose sometime the answers are closer to home than you think. Keep your fingers and toes crossed for me ladies. Lets hope we get somewhere. I don't mind if the road is long, I just want to know I'm on the right one. Thanks for the hugs Maz I reckon I got them at a time I really needed them. Best of luck Monchika, I hope you too get some answers.