I had an appointment with the Paed this morning(gold Coast one not specialist) and he told me all the latest test are normal, which means unless there is something from the cardiologist, the next step will be the brochialoscopy and CT scan, under general.

Fiona Jill I just saw your reply and yes I have been researching (kelly's mom BFing site) and I talked to the Pead about my concerns today and yes it will only be a 4 hour fast at most which I am MUCH happier with!

He asked me how I was feeling about things and I said we are trying to take things a step at a time and that we were intially hestitant about the brochiloscopy and lung biopsy and what our fears were about doing the investigation and then coming up for nothing. He said he can understand that but that if it is a slow decline and then if you can get a diagnosis then there might be treatment avaliable to him. He also reassured me that the pead anthetists are VERY qualified and the risks are very low with the procedure and him being under general.

Felix was weighed and measured and he isn't happy that although he is gaining weight, it is not enough and he has dropped another percentile, he also hasn't grown height wise, so now is not good at all, my appointment with the paed dietician isn't till March, and the paed is trying to get him in sooner. He said if we can't get his weight up soon we are heading for a comp feeding at night (formula fed through a tube nasal gastricaly) this of course will just pose an incrediable threat to our breastfeeding relationship. I feel so upset that after all we have been through and tried we might end up with something SO unnatural like this. I have worked with older children who have tubes and the tube part doesn't bother me but the formula all night does..

I am feeling upset and like I am failing him again, I don't want to give up breastfeeding, I just want him to get through this without affceting the important parts of our relationship. We also co-sleep and with a nasal gastric feeder(they get hooked up to a machine that pumps the formula) I'm not sure we'd be able to do it, not really sure how a 9 months old baby who rolls all over the bed will either. I just PRAY the dietician will have answers and we don't have to go down this path.

His breathing is still the same, and was more audiable on the weekend, and I asked the paed when I should worry. He told me to ring his mobile if I feel concerned or bring him to the hospital

Anyhow that is us at the moment, still waiting. On the positive he is developing normally and pulling himself up on everything ATM and wanting to cruise furniture and hold on while he walks around, he quite exhausting, but it's great to see that he's active!