Katanya sorry to hear all news was not good. I hope you don't have to go down the nasal tube. I'm sure they will try everything before they resort to that.

I was looking through my Dietician booklet that I was given in regards to feeding a CF baby. I had a look and they also suggest icecream, cream and fullcream custards. It also suggests adding things like cheese sauces or grated cheese to the vegetables. Even bread and butter with peanut butter, jam, honey and cream cheeses.

It also suggest that when breast feeding that polyjoule syrup or a supplemental formula feed could be a way to boost energy and nutrient intake, if baby is not putting on weight.

Don't know if that helps, you may have already tried these, thought I would let you know anyway.

Glad that you were able to get to the dietician next week.

Good luck with everything and big hugs to you and Felix.