Well we are back from our appointment, with some good, bad and fair news...

The good news is we saw the cardiologist and everything is fine with his heart, the did an echo and ultrasound, and picked up no abnormalities.

The Bad news is Felix has lost weight nearly 200 grams since dietician, now he is the big blue void on the charts, below the bottom percentile. He is 7.64...the bottom weight for a 10 mth old boy is 8 kgs....so we are talking not good at all...I am going to get a hospital grade pump tomorrow, and add polyjoule to an expressed feed, but we could be looking at nasla gastric tubes after all.

The fair news is the expected booking for the brocialoscopy and CT scan which is next week, the thursday before easter. It is at 8:30 am and I have to bring him in at 7:30 am, I had a bit of discussion about the feeding beforehand, I mentioned the 4 hrly thing and he said it depends on the anesthetist, he said how about 3am? I want to make it 4 hours before procedure...specialist said because it's down the throat they may be extra cautious.

Anyhow we have been warned that it is not a definate that we will find out what is going on, but we feel now we should explore things further..

Next thursday is not going to be a good day we may have to stay over depends on how he comes out of the anesthetic, but will see on the day.