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Thread: Felix's Mystery Respiratory Condition

  1. #37
    katanya Guest

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    Christy the dietician is on friday, I have my friend coming with me, who's baby is also breastfed, her baby too is underweight but not as much as Felix, so it'll be a good support!

    Lara and Michelle thanks for the support, I actually came really close to loosing it yesterday, I think the stress of moving house, being sick myself, and then the whole illness and feeling like a failure, really got to me, my house is one huge mess and really bugging me.

    I actually had this feeling I wanted to walk out the door, it wasn't a rational thought, just an overwelmed feeling, DP was home and playing playstation, I told him if he didn't get off his butt and help me unpack I was so close to loosing it it wasn't funny. He got up and helped, and told me not to worry about the house just to get better. But I think the part of me that was staying strong just crumbled.

    Today I woke up feeling much better, I decided to look into some alternative therapies since the medical ones were making me feel so bad. I am going to go and see a naturopath, and get a iridology reading to see if they can pick up anything about him that the tests aren't. It may be a point to steer the doctors in. Also bought some fenugreek tablets to make sure my breastmilk supply is totally good. I am going to start pumping extra to help increase my supply, just in case that's a problem.



    also some one suggested to me that i could express for the NGT if we ended up there, so it makes me feel more positive about it!

  2. #38

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    Katanya good luck with your appointment today. Let us know what happens.

  3. #39
    Jackie Guest

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    Was just coming here to say the same as Iris, hope you get some positive info.

  4. #40

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    Just doing the same

  5. #41

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    Hi Katanya

    I'm also just checking in to see how your appt went... I hope it went well, and you got some good info and support.

  6. #42
    mummy2B2 Guest

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    Hope your appointment went ok.

    Have you thought about using formula in his food? Like anything you make with milk or water using a bit of pre-made formula? I'm sure soft chewy biscuits in small bits would be good. Then you could be giving him the butter and formula and everything else at once? Formula is supposed to have more calories than just milk right?

    Maybe you could make your own formula custards for him?

  7. #43
    mummy2B2 Guest

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    And I just thought of something else, if it's just a matter of needing the extra calories at night, could you use one of those tube things that sit near your nipple so he can feed like he is used to but still drink formula?

  8. #44
    katanya Guest

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    Well here I am to update about the dietician, Thanks so much for the support about the dietician you guys, I felt very touched when I got here and saw your well wishes!

    Well there is good news, Dietician doesn't think supplimenting is neccessary yet.

    What she started by saying was Babies with respiratory illesses need up 20-50 % more calories than other babies their age, so looking at what a "normal baby" eats isn't going to cut it, she said by increasing his food by 20% and seeing the effects, then if the growth rate doesn't increase then we'll look at other ways.

    Okay firstly she said that nutrution wise he is still getting heaps of breastmilk so we are just looking at ways to increase calories at this point.
    Firtsly she told me to watch the amount of water he drinks to keep it low as babies will drink to their fluid levels, and water will replace breastmilk if he has too much, so sips only to help him eat more.
    Then she wants me to introduce eggs and meat to his current diet, he ate the eggs okay, but I will ave to work on the meat.
    She told me to make up little bits of mince everyday to add on the side of his meal and just offer it everyday, sometimes it can take 20 times to introduce a new food, but keep trying and eventually he'll get there.
    She also said we are aiming for 1/2 cup of food 3 times a day, and before breastmilk.

    The paed had written a note to her whether to add supplimentry feedings but she decided we should try the extra food first.
    While we were there Felix and Emmalee were racing around the floor in her office, and she commented how active he was and that his appetite is increasing but so is his burning ability, she said we have to ensure every mouthful is worthwhile.
    She doesn't want me to worry about fruit and vegs ATM, because he is getting nutrition from BM. We'll work on that once the weight is better.
    She said once he is 1 year old we can start introducing cows milk.

    The other bonus was I saw the lacatation consultant on the way out that we had in hospital, and my friend has had to see her several times, so I had a chance to ask her about the benefits of formua and whether it would make a diffrence, she said I should bring her into the consultancy and that if I can express enough that I should ask them if we can add to that rather than use formula. Only problem was she wondered whether I'd be able to produce enough for a NGT..but it's okay ATM anyhow!

    I have been using fenugreek tablets and my milk is spurting, so I feel confident that I have enough again for sure now.

    The dietician told me to stop weiging him in bewteen visits to her and drs because it can really get you down while your child isn't gaining..so i'll have to kick my abit of going to the MCHN!

    Next stop is to the Royal Childrens on the 15th to see specialists again! DP is coming this time, so will be great to have that support!

    [email protected] thanks for your suggestions about the formula, but I have been told milk custards are just as good, he is nearly 10 mths old now so heading towards the time when cows milk is okay anyhow.

  9. #45
    mummy2B2 Guest

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    No, I just meant if they were going to suggest him drinking formula, you could try putting it in his food first.

    I envy you still bf at this age. Once DD had formula, it was an uphill battle to get her to bf again, and she never got off comp feeding, in the end I had to give up.

    I just thought for Felix to keep off formula bottles for as long as possible.

    Glad to hear it's unnecessary. Keep up the good work Felix, and eat you meat! lol

  10. #46

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    Thats such good news katanya! Whew.... now to make a carnivore out of him What a relief to hear that you don't have to worry about NGT, hopefully forever! (finger's crossed!!!)

  11. #47

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    Great news Katanya,

    I found introducing meat to be so hard, but your dietician has some good ideas. looks like you are in really good, caring hands there. Glad things are not at the extreme level for you and that you can keep breastfeeding without any worries.

    Best wishes Michelle

  12. #48

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    Katanya great news. Sounds like your dietician is willing to try things first, before having to change things drastically. What she has said to you about the amount of food a child with respiratory problems needs is exactly what we have been told. Also the water things too. We have been told that we should try to encourage cows milk to drink, instead of water (whens she is older that is).

    Good luck with the next app for the 15th.

  13. #49
    Jackie Guest

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    Glad to hear you got posstive news from the dietician, let's hope that the next weigh-in shows a nice big increase.

  14. #50
    katanya Guest

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    Well tonight I have something exciting to share!!

    I made a smorgesboard of beef mince, potato with butter, avocado and flaxseed, and scrambled eggs (with cream added), plus carrots sticks and a couple of tablespoons of yogurt with polyjoule added.

    The four things filled a quarter each of a baby bowl, and he ate about HALF!! Including several mouthfuls of mince!! then he chewed a bit on the carrot, and then ate ALL of the yogurt!! I hope we are turning a corner!

    His poos the today have been quite solid, and there have been heaps of them, I hope this doesn't mean he's not absorbing the food now he's actually eating!

    And he drank breastmilk as usual before bed! it continues!

  15. #51

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    Go Felix Go

  16. #52

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    Woohoo! you GO Felix!!!! =D> \/

    Excellent news about the dietician Katanya, sounds like she has some great ideas there.

    Keeping my for a big gain at his next weigh in!!

  17. #53

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    Yay for Felix!!!

  18. #54
    katanya Guest

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    hmm you can put those pom poms away he's had such a bad eating day today oh well 2 steps forward on step back huh?

    Only ate 2 mouthfuls for dinner! He has been pooing ALL day after all his food yesterday, I wonder if any actually hit the sides!

    Here are some recent pics of Felix and his favourite activity ATM..cruising the furniture!

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