We had the long awaited biopsy results today..

well it was good news firstly because the inflamation on his lungs in minor, and the piece of lung they sampled contained no scarring.

Unfortunately they were unable to determine a cause. The positive is they have identified it as fibrostic pneumonitis, which he could either grow out of in the next few years or by the end of childhood (with a chance that he will always have a vunerability there)

They are still unable to rule out completely the posibility of autoimmune conditions, at this stage, there are more tests, but they will wait for other symtioms to present themselves for those to be taken..

Hi current state ogf health is good, with the crackles (inflamation) in his lungs is still there as usual, obviously winter is going to be a difficult time for him as he is very vunerable to have a significant reaction to normal viruses..

The next step was determining whether we would start on a trial of corticosteroids or not.. the specialist explained that the sucess was not guaranteed, with this sort of condition. He was incinded to believe Felix was improving on his own and perhaps with his health being so good curretly that perhaps we should just sit tight and keep a track of him. he asked my opinion. I agreed that his health (appart from the breathing rate and oxygen requirement) was good, and the steriods have nasty side efefcts that using them when we may not even see results (minimum course of 2 months) seems pointless when he is doing better without anything.

We are going back in a month for a sleep study to see what his oxygen levels are doing at night and we get to stay at the lodge(accomodation near the hospital) instead of being admitted YAYAYAY!!! I got the shivers being in the hospital again today..SO glad we dont have to stay in there again..Dr Francis's reason was to avoid Felix catching anything from the other patients!!

Anyhow..no cause, but more info which makes it all easier to take in..

Basically I have learnt that I just have to learn to take things as they come, there is not going to be a definate answer about this one.

What his breathing will be like as e gets older is uncertain, the only thing I am still sure of is that we'll be able to deal with it!