Dj came home on the 11th - after being put on Keppra to stop any more fits and has been labeled epileptic. back in hospital in the wee hours of the 12th with croup. let me tell you i turned into a banchee at 7am thanks to some stupid doctors.
we went to the pead yesterday for the last lot of blood test results and to also upp the Keppra dosage.
all tests came back clear - bar one. the Genetic one.
It seems Dj is missing a chromosome. chromosome 15 on the cytogent band q11.2-q13.1 no idea what it means. but they also have no idea of its affects. could only 'see' this as of 2.5 years ago so they dont know in the long run how it'll affect DJ. DH and I have to have blood tests done in order to work out where its come from - or if its just a random muation. there are two syndromes that are assosiated with it - but until DH and I have bloods done we wont know which it is. so now we have more of an idea, we can help DJ as best we can. and by the looks of it Vic dosen't suffer from the same thing. but if eather of the boys have kids of their own they'll need to know bout it. (i'm guessing)
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