nickel: yeah, thats what our pead said - but he also said they're still in the dark about the affects of both Angelman and Prader-Willi syndrome.

Crazyone: i was the same about the MRI, but when DJ wasn't walking/talking by 18 months i felt we needed to look deeper. we had bloods done - it also took 3 people to hold him down plus another to take the blood. X2 due to him moving his arm the MRI isn't too bad. the sedation part is - for DJ as he's really active they kind of need him to be asleep - something he's not good at LOL. the CT is 'worse' in the sence its like 500 chest X-rays. also the detail isn't as good. but it can rule out scar tissue ect (we had one due to the second fit) with the blood tests ask about the genetic one. it takes 6 weeks and thats the only reason we found out why Dj had GDD, which could also be cuppled with the epilepsy and the chromosome 15 deletion. maybe also (no idea where you are) talk to your pead about early intervention with phyiso, OT and speech (if you're not already) thats what we're starting now, hopefully that'll help DJ out.