I'm sorry you have had such a rough couple of weeks, Dansta. I hope DJ is feeling better and you have the seizures under control.
Has he started at the kinder you spoke of earlier yet? The symptoms of both of the syndromes associated with chromosome 15 are managed with OT, physio and other therapies. I hope you have access to a really good kinder for DJ, there are some great ones around.
DJ sounds like a gorgeous kid and you seem like a beautiful, caring mum. I hope you get answer's soon so that you can all keep moving forward.
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