Hip Diplaysia Support Group #3

[bizzib1975]

Hi All,
I just wanted to post to first vent my story and secondly seek some support and suggestions for what i am going through.
I'm 32 yr old new mum whom was born with CHD that wasn't detected until i was almost 5, many operations and years of hospital visits to finalling repair my right hip. I currently am in the processes of having another operation and my movement is very little now and am in pain daily making it hard to walk let alone carry by baby.
3 Months ago i gave birth to a beautiful girl Madilyn and she has since been diagnosed with the same thing but in both hips and as of friday is in a Dennis Brown Bar. Firstly i'm deversated that she is going through the same thing and for 3 days now my baby has done nothing by cry and eventually cry herself to sleep. I've been reading on the site and most people have said they babies have been fine with the brace so i don't understand why Madi is soooo upset. It's not only breaking my heart but breaking me full stop- I Don't know what to do!!!
I called the hospital and they say to "just give it time" but they aren't the ones trying to handle my princess. She's not sleeping and not eating properly either and as for the suggested more tummy time - i feel that i can't even get to the stage of having playtime.
Please if you have any suggestions i would be greatful.

[bridee]

Bizzib, I'm sorry don't really have any suggestions just wanted to say I'm thinking of you and hopefully it will get better. My daughter is in a pavlik harness so not sure if babies adapt better to it than the bar. Hopefully someone else here will have suggestions for you. Just remember it is much better your daughter go through this now than later and have the problems you had/have. It will be worth it in the long run.