Bridie why don't they want you to use powder of any type?
Liddy that is great news for your DD! I presume a dennis browne is a type of brace?
Maybe one of you can decipher DD's scan report?
"There is moderate displaysia of the left hip. There is only a rudimentary acetabular development and femoral head coverage measures approximately 30%. On the right hand side though femoral head coverage measures between 50 and 60% there are some mild changes with rounding of the acetabular margin and laxity of the femoral head under stress."
Does that mean anything to anyone? I just rang the hospital and they said they would 'triage' her case and if its non urgent there is a 3-6 month wait to see her! I think I'm going to have to find a private Paed before that to get things moving along.
Dusty - I have no idea on all the medical terms, never did, but I know someone will be able to help. Powder is a bit of a no no because the tiny little grains can get into casts and under braces, making bubs very uncomfortable and possibly creating sores. We used powder on our cast, to try and kill off the smell, but none on her skin, but we did in the first brace and it caused her no grief. We were asked if we wanted to go public or private - we went private and didn't have to wait. If you're in Melbourne, I can PM you our surgeon's details. We loved him.
Hi hip mums, can anyone help me out? My friends 6 wk old has both hips fully dislocated, what is the most likely treatment?
My DD needed a closed reduction + 12 wks hip spica + 9 months brace for one hip dislocated, but this may only have been because it wasn't picked up until 6 months. Because they have picked my friends DD up so early, is a pavlik harness all they will need? Even with full dislocation? Is she likely to need surgery to relocate the hips?
Last edited by appletree; October 11th, 2010 at 07:11 PM.
Dusty - Are you in Melbourne by any chance? We have gone private as we didn't want any delay (our little girl was already 11 months when diagnosed). We have been happy with our orthopedic specialist and hospital so far. We had an appointment within a week of our X-ray and surgery scheduled for 2 weeks later. DD then caught a cold a few days before her surgery date and we were easily rescheduled for another two weeks on, and then another two weeks again when her cold lingered. She finally had her open reduction on Sept 8th and has been in her cast 5 weeks tomorrow with a cast change in one week and then six more weeks in the new cast.
A quick update on our X-ray last week - It was all good news so far thankfully. The surgeon was happy with the bone development that had started to occur over the previous 4 weeks. He mentioned that when they opened her hip joint up for surgery, he found that the acetabulam was actually slightly convex in shape, rather than concave as it should be. He described it as a bit like trying to balance a ball (the head of the femur) on another ball (the acetabulam) and hoping that it stayed there. I think he was quite relieved to see some better shape starting to form. I am so glad that he didn't mention any of that immediately after the surgery as I would have spent the last 4 weeks stressing that her hip would pop back out any time she moved. DD jumps around inside her cast like a little jumping bean when she gets excited and I would have been trying to stop her (as if I would have had any luck with that...lol...)
I had to call the surgeon's office today as I am seeing some worrying skin breakdown in some hard to see places in DD's cast. There is also a spot towards the top of her upper thigh that appears to almost be cutting in to her and there is what looks like dried blood on the cotton padding. I spoke to the orthopedics appliances person in detail (who's little girl was actually in a spica cast due to DDH as a baby too) and she has said just to keep a close eye on the problem areas and try to "limp through" to the cast change next week. DD is not showing any signs of discomfort or infection and is as happy as ever, so it may just look worse than it is. Short of taking the cast off early, there really isn't any other way to asses the problem areas. Of course, any sign of discomfort or a change in behaviour or demeanor and I will need to call them back immediately.
Trying to keep the cast dry inside is proving to be a losing battle between DD sweating quite a bit and some urine that is escaping from I have no idea where. I have her so carefully nappied and cotton wooled and padded up but still she gets damp. It's driving me crazy!! We invested in a more powerful hair dryer today with a good cool shot function...I swear this dryer nearly blew DD off the bed...lol... I just keep telling myself that I will eventually outwit this cast!!!
Hi Appletree - my daughter was seven weeks and went through pretty much what your DD did. She had the DB brace for 4 weeks, open reduction and cast for 5 weeks and then the rhino brace for 7 months. I don't think its an age thing, I think it depends on the severity. But for your friend, I'd be surprised if they opted to operate straight away - they'll try the brace first.
Karma - That's great you got some good news in the x-rays! I hope DD's skin is okay
Thanks PacRakMG, i still have my fingers crossed just for a pavlik harness for her, i hated that DB brace! Her appointment is today so won't be too much longer before she knows for sure what is happening. Your poor little girl going through so much as such a tiny little thing though, how is she doing now? I look at my DD now and can't even tell that she went through all of that! She loves looking at the pictures though, and saw the article on DDH in one of the latest parenting magazines and was amazed!
Karma- i had to giggle at the image i had of your DD jumping up and down in her spica! My DD used to do that too and it was hilarious! I love that they can still be that happy despite the great big lump around them That is brilliant news about the excellent bone development in just 4 weeks though! I hope the skin breakdown doesn't get too bad, i remember when they did cast change for my DD there was a lot of muck in there and some of the dark stuff i was suspicious of was just leftovers from the surgery. We escaped with just one small patch which needed some prescription cream to treat it by the end of it. One really weird thing though was that DD developed what looked like pubic hair! It was really odd, but must have just been where the cast was covering her and it turned the hairs a bit darker than normal as they disappeared after a couple of months! I completely freaked out of course... hahaha
Appletree - DD is fine now. She started walking at the start of September (17 months) and there is no way to tell that there was anything wrong. We don't have a follow up appointment until May. Yeah, I hear you on the DB brace. That bar!!!! GRRRRRRRRR. How old is your DD?
She is 3 1/2, she still walks with her left toes turned in a little, and watching her run is hilarious! She also sits in a W shape, but all this has been raised at each checkup and they aren't too concerned. We have been told to expect another round before she starts school, so more surgery and another 6 weeks in a spica as she still hasn't fully developed enough for them to be happy yet Fingers crossed that time on its own and continuous bouncing has played its part and we don't have to do this though.
That bar was so horrible, i slipped down the stairs one day with her in the brace, and unfortunately broke her leg because of the bar Back into plaster for another 8 weeks, except this time it was just her leg and she could pull it off! We spent ever 2-5 days in emergency getting her re-plastered... I still have each of the casts she pulled off and she loves getting them out and telling me how she was so naughty.
dusty - i have no idea what that means, but if i had to wait, i would go private (if you have the finances)
yay liddy!!! great news!
we have some good news -
we have some progress! the harness is working fab, and spec is really pleased!
the rash in her skin fold is also clearing (thanks for the tips about daktozin and the powdewr too).
i also have a tip to offer - aqueous cream has worked a treat on the dry skin under her harness, i can just get my fingers under (except for her legs) when she is asleep, and the aqueous cream has really soaked in and moisturised her skin
cheerio for now, i seem to only get to BB once per week, so have a good week everyone!
Doh! I too only just realised that we were up to page 2 of posts!
Appletree- our newborn had both hips affected and went straight into pavlick harness.
OMG on the fall and broken leg! that sounds like it would have been an ordeal, glad DD was OK.
Karma - good news on the xrays! fingers crossed the cast lasts for the rest of the week!
other news from us -
we had physio and change of harness today -
DD has an umbilical hernia - I did know this already, as the nurse had said, but also said that they usually repair on their own. However, physio said that they are quite common with hip dysplasia babies, as everything is "pushed up" and it is better if they are taped. Anyone else heard this?
Physio also said that torticollis (?sp) are also quite common with HD babies (neck turned more to one side) which DD also has, but she can turn her head both ways, just seems to prefer one way. Anyone else heard this too?
I have just read this most recent thread and wanted to join in.
I have two girls who have just been diagnosed with DDH in both hips. My oldest is far worse on her right side and will require 3 lots of surgery. My youngest is 16 weeks and has been in a DB Bar for just under a week. DD1 was diagnosed late at 2 and a quarter. It was only once she started walking that our MCHN agreed there was something wrong (I had my concerns as I thought I could feel a click/clunk).
There is no family history of hip dysplasia, nor where the girls Breech. I guess now with DD1 and DD2 having bilateral DDH there is a family history (they are the beginning).
The things I would notice in DD1 (I had not noticed anything for DD2):
A click when I scooped my hand under her bottom to put a nappy under or when I picked her up. I think she was about 3 months when I started noticing this.
*mess* would be only in one leg crease and not the other, although her creases appeared to be even.
Once she started cruising she would kick her right leg out when it led, but not the left.
She took months to go from cruising to walking independently and would not walk holding our hand/s unlike the other kids.
She often chose to walk on her toes.
She wouldn't climb the stairs of play equipment (other kids her age had no trouble).
When I put her in the ErgoBaby one leg would wrap further around me than the other, even when I was certain her bottom was centered.
Most things I have realised were associated and signs on looking back. Once two health nurses a paediatrician and a GP had all said she was fine just from external checks I stopped asking if something was wrong. I wish I hadn't, but I can't go back now.
I'm so glad I can share this tough journey with other people who are going through the same thing.
Madcat - Sorry, didn't see you had posted! DH has no other signs at all of ever having hip dysplaysia. And yep, something needs to be done. How many times now, since having a baby with it, have you heard "Oh, I know so and so and their child has it". Not so uncommon as people might think. I wish I had've known about it before DD. I thought it was a things dogs were screened for, didn't know it happened to kids. Had I have known, I would've gone to RCH when DD was 2 weeks old and got the ultrasound we were asked to get. We did try at our local imaging place, but they refused, saying she was too little. But if I had persisted, who knows, maybe it wouldn't have gone on for so long. Hindsight, hey?
Welcome OLEM. There are plenty in here to chat with, but I'm sure you'll have invaluable advice too. I often wonder if I was to have another baby down the track, if they would be diagnosed too. Please tell me it is somewhat easier second time round (well, I'm hoping my own headspace would be anyway)!
PacRakMG - I wish I could tell it was easier the second time around, but this is all new for me. We took DD1 to meet the surgeon last Thursday as she has only just been diagnosed at 2 and a 1/4 and he asked if he could check our youngest while we were there. We were then sent for an x-ray and from there straight to orthotics for the DB Bar to be fitted. It was all quite a shock as once again we were being told that DD2, like DD1 was absolutely fine. The x-ray showed that the (I don't know the correct terms or parts) angle of her hip joint was too sharp and that both her legs were off line with the potential for both to become fully dislocated (like her sisters). Neither of my girls were in a breech position nor is there a family history. My labours were fast, but I have been told that wouldn't create the problem.
I am just popping in to say hello and ask a question or two. DD2 is four weeks old and she goes in for a US on the 13th of November to check for HD, she was a breech bubba and was fully engaged prior to a CSec, we were going to attempt a VB, but in the end both her and I were not longer doing weel enough to even attempt it so she had to come out through the french doors. She was a SCN bub and her Paed checked her a couple of times after delivery and wanted her to have a US to check, he said she has a 1:3 chance of having HD, which we are seeing as a 2:3 she doesn't
I just wanted to know what the US is like, is it similar to what we have when we are pregnant? I just like to get a bit of an idea so I know what to expect, how long does it take and what do they look for?
Thankyou and I think you are all really amazing it must be so hard to see your little one's go through months in harnesses, surgeries etc
Take care xxoo
*Beema* I saw your name on the notification and actually went "NOOOOO". After everything you've been through already.... The initial ultrasound that my DD has was like our pg ones. The specialist put her on her back and splayed her legs out, like in a nappy change and then scans the hip. They used warm gel that they have for babies, in an attempt to not get them too upset and it didn't take very long. You'll probably be asked to hold her legs still so they can do it. I've got my fingers crossed that your paed is just excellent and cautious and everything is fine for Flicker.
dusty - we have a safensound car seat, and we put a piece of foam under the lining to bring her forward more. DD legs are out wide, so couldn't fit inside the seat, this way she sits a bit more forward/higher in the seat.
risk factors that dd had -
female - check
first born - check
family history - check (I had pelvic dysfunction - loose ligaments - during pg), DH cosin had HD
post-date - check (6 days over)
breech - no
low fluid levels - no
"compact pg" - check - I was all baby.
Also - DD has a folded ear, another sign of being all squised up in there.
Karma - how is yr little one doing?
Madcat -it seems wrong that yr dtr's HD was missed. I agree, train health prof better! DD was actually examined by two nidwives before the Ob picked it up, and even afterwards, the midife could only pick it up in one hip - and she has severe - category D!!!!
Olec - two - OMG!
Beema - I feed DD while she has her u/s, she has even slept thru one! fingers crossed you get the all clear, but thumbs up to you ob for checking!!!
AFM & DD - last u/s scan went well, spec very pleaed with progress so far. she has us getting u/s every three weeks to keep tabs on it. It's a long day, but worth it.
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That is brilliant news about the excellent bone development in just 4 weeks though! I hope the skin breakdown doesn't get too bad, i remember when they did cast change for my DD there was a lot of muck in there and some of the dark stuff i was suspicious of was just leftovers from the surgery. We escaped with just one small patch which needed some prescription cream to treat it by the end of it. One really weird thing though was that DD developed what looked like pubic hair! It was really odd, but must have just been where the cast was covering her and it turned the hairs a bit darker than normal as they disappeared after a couple of months! I completely freaked out of course... hahaha
Fingers crossed that time on its own and continuous bouncing has played its part and we don't have to do this though.
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