Hip Dysplaysia Support Group

[Pipsqueak]

Hi there all,
I'm new to this! We have just been given a diagnosis of DDH with our baby girl Lucy, 8months, and have scheduled surgery for 7.4.08...really soon! Kind of in a head spin and freaking out somewhat. Lucy has right hip dislocation, needs an open reduction (???I'm probably using all the wrong words, sorry!) arthrogram, aductor snip and cast. It has all just hit us really, and we're launching into this new world of surgery and treatment. Any words of wisdom and encouragement gratefully accepted! Practical tips on living and coping with the casts and braces, especially that nappy situation!
Cheers everyone,

[minimatron]

Hi Pipsqueak, sorry am not too sure about surgery for ddh but I am sure you will get many answers here. Good luck. It is a total headspin when you find out that your dd has a problem with their hips. Its hard work at first but the results are usually pretty good.

my dd olivia was in a pavlik harness for 6.5 months. She is now almost 1 (April 1st) and is walking around using her trolley, sometimes standing by herself and climbing. You wouldnt believe that she had any issues with her hips.

Sorry I am not much help, but please feel free to vent in here, coz I sure have, especially at the beginning when things are hard. You'll find great support in here.

Where abouts are you?

And Laura, good luck with Harrisonas appointment in 2 weeks,

Love Melissa

[Pipsqueak]

Hi all,
We're near Gosford on the Central Coast NSW. Lucy's treatment will happen up in John Hunter in Newcastle, only about an hour from us, so not too much travelling to do.
Pipsqueak.

[Pipsqueak]

Hi again,
I have been reading some past posts and was wondering if Karen (Bubbagirl I think??), was still here as I'd love to hear her advice on keeping the cast dry...I think it was her who said she'd found a way that worked really well and only had had a few wet patches!
Cheers everypne,
Pip.

[Haileys Mum]

Hi Pipsqueak,

Using the crawler nappies with Haileys plaster works perfectly.
We've not had any wet patches or any problems.

[Pipsqueak]

Hi there again Jo,
Nappies go on outside or inside of the spica? I'm sooooo confused! I'm guessing they'll tell us all this at the hospital, but from all my years as a mummy, it's all the best stuff you hear from the other mummies! You know, the stuff that really works.
Cheers,
Pip.

[Haileys Mum]

Hi There Pip,

Lucy will have to wear two nappies, a smaller one tucked inside the spica, they cut a hole out over the spot!, then a big one over the top to hold the bottom one in place!! We actually haven't had trouble keeping the spica dry, bu have had to use crawler nappies tucked well up into the back at night as the wee seems to go straight down! They told us to use new born nappies but they're not nearly absorbant enough.