Hip Dysplaysia Support Group

[Razzberry]

Hi, my DD Ella is 6 weeks old and had an ultrasound last week to check her hips as the paed said she may have hip dysplasia when she was a day old also when we saw him again at 3 weeks.
We go back tomorrow to discuss results, though I picked up the scans and reports yesterday.

It says on the report: bilateral grade 2 acetabular dysplasia. it also says the right and left acetabular roof is shallow.
The left femoral head coverage measures 48% at rest and reduces to 38% when stressed.
The rightfemoral head coverage measures 44% at rest and reduces to 38% when stressed.

Does anyone know what this means? how bad is it? If she is gade 2 how many grades are there? will she need to be in a harness? etc.

I guess I will get some answers tomorrow at the paed, just so scared and sad for my little bub!

[nicoli]

Hi all

Just popped in to say hi as I haven't been on here for a while. Xavier had his second ultrasound (14 weeks old) this week and even though I haven't spoken to the paed yet the sonographer said it all looks good. He has 60% coverage in one hip and 'well above 60%' in the other. Good news for us.

To all the new forum member - welcome. I am sure that all of you will find great comfort in talking to the other parents going through similar situations as you on here. When my daughter was diagnosed at 3.5 months (now 2.5 years) I got so much support on here.

Erybery - I'm sure you will find out all about this tomorrow, but I think grade 2 is the second best grade if they have hip dysplasia. Grade 1 is the least severe. My daughter's 'bad' hip was only 17% coverage when she was first diagnosed and I believe that full coverage is somewhere around 70%. Good luck with her treatment. Since she is so young and it is not extreme, hopefully her it will be short and sweet!

Hera's dad - so sorry to hear your story. I hear it all the time. I am so lucky to have had a wonderful GP and community nurses who have always listened to my concerns. Hopefully Hera's treatment will be successful and the time will fly by. Once they come out of casts/braces they pick up where they left off and catch up so quickly. Hopefully Hera copes with not being mobile for that long. You might have to try to find other activities to amuse her and take her mind off things.

Take care everyone

Nicole

[bridee]

Erybery - my DD2 had coverage that was about 50% in both hips. Initially at the 6wks scan they said it could still correct itself and to rescan at 12weeks. Nothing had changed at 12wks so she went into a DB bar. After 6wks her coverage was 70% so with only mild dysplacia babies respond quickly to treatment.

[MummyNaomi]

Hi Everyone,

Eryberry, sorry to hear about your DD, hope that all went well at your Paed today and if treatment is needed it is brief

Leon - sorry to hear that your DD was diagnosed so late - I can understand your devastation, I hope you find some support in this forum, the others have been very helpful with info and support

Nicole - good to hear that Xaviers coverage is so good - congrats

Corelly - sorry to hear that the brace cant come off yet - and it must be so tough to deal with in this heat

Jesska - it must so so tempting to give Lahni a nice cool bath, how frustrating!!

Well this is the week we take Bailey back to the hospital then straight over to the orthopedic surgeon straight after and if his acetabular angle hasn't improved he will have to wear a brace, most likely a denis brown bar, so I have everything crossed for thursday so thats not the case. Bailey had an appt with a paedeatric physio on wednesday due to his gross motor skill delay and she confirmed he had poor tone, especially in arms, neck and back and when I told her about the dysplasia and possible bracing she said "You dont want that, it will further hinder his development" - NO SH#& SHERLOCK, of course we dont!! Sheesh, talk about stating the obvious.

Naomi

[nicoli]

Naomi - what an idiot that woman is to say that to you! Besides stating the obvious, if he needs treatment that is the most important thing and everything else will have to be put on hold. I will keep my fingers crossed for you this week. Let us know how you go.

Nicole

[Razzberry]

So the paed is sending us for another ultrasound in 4 weeks at the Childrens hospital. He said he wants to give it bit more time to see if there is any improvement as her hips aren't dislocatable or out of the sockets, they are just shallow. so now just have to wait.... I just really hope waiting doesnt make it worse!

[bridee]

Erybery - waiting won't make it worse given the hips aren't dislocated but make sure if nothing has changed in 4 weeks you get treatment because the quicker you seek treatment the quicker it will be over and fixed. We are proof of that and our cases seem similar.

[bertie]

Hi Everyone,

Just thought I would post some good news, as I hadn't been in for a while...

We had our 2 month check up (2 months since coming out of the spica) - Olivia had an x-ray and the specialist was very happy with her progress! He could see an improvement since the last x-ray (when she came out of the spica) - her hips still aren't quite perfect, but he said they should continue to improve now on their own, until they are completely perfect. She has been wearing a rhino cruiser brace just for sleeping since she came out of the cast - he said to continue with this while she still tolerated it, but not to bother getting a bigger size if she grew out of it. So it was all very positive - I was SO relieved, as I had it in my mind that, because she didn't have bone growth yet when she came out of the spica, her hip would slip out again, but it's all looking good. Our specialist doesn't seem to talk in terms of coverage (and I forgot to ask him about that) - he talks 'angles' - one hip is 20 degrees and the other is 15 degrees - I forget which is the better one, but he said the angle would even out over the next few months. He could also see signs of her right (dodgy) hip bone growing. Yippee!

Anyway - we go back again for another x-ray and check up in 3 months, but then, if all is still ok, we won't need to see him again for another year.

I know we're not out of the woods just yet, (I won't relax I don't think until her hips are completely normal...), but I just wanted to give everyone some good news - there is light at the end of the tunnel!

Hope all your babies are doing well,
Bertie

[MummyNaomi]

Bertie - thats great news

[Miss.September]

Fantastic news, Bertie! What a little trooper Olivia is

Corelly

[MummyNaomi]

Crap news for us, Bailey has to wear a dennis brown brace 24 hours a day for the next 6 months. Xrays today were no better

sooooo, soooooooooooooooo angry at the world right now. He is fitted with it on monday, they wanted to do it this arvo but my boy was tired, grumpy and hungry after seeing the ortho and its 43 degrees here today

So he can have as many baths as he wants in the coming days and roll around naked as much as he likes, might as well make the most of it

Naomi

[nicoli]

So sorry to hear your new Naomi. I know you must be feeling so disappointed at the moment. Just remember that the time will go quickly and before you know it Bailey will be on his way. If it's any comfort, my daughter wore a dennis brown brace for several months full time before requiring it only at night for almost 18 months and it is quite comfortable and easy to dress and change them in. Scarlett ended up being able to roll over in it and even tried to walk in her brace. You might find that after some treatment, you may be able to take it off for baths or swimming. Good luck on Monday.

Nicole

[Miss.September]

Big hugs for you, Mummy Naomi. Hope you and Bailey can try and have a good couple of days.

Corelly x

[crosswig]

Mummy Naomi,

Sorry to hear your news. Hope that Monday (and the following couple of days) goes as well as it can for you. I know it is cold comfort but this time in a brace does go quickly. Let us know how you are going.

Crosswig

[Jesska]

Naomi - i am sorry to hear about Bailey having to go into the brace. i know that angry feeling you are feeeling oh to well.... i was really upset the first day that Lahni went into her brace but when she woke for an early morning feed the following day it didnt seem to worry her so i thought if she is ok with this then why cant i be... then also got it through my head that i would rather go through this now when she wont remember it than having her in it when she is older. you will get used to it. will be thinking bout you n bailey on monday!!

Bertie - thats fantastic news bout olivia!!!

as for Lahni, she has now been in the brace for 7 weeks now, and on monday morning at 9am we are going for her first ultrasound. then at 4.30 we see her peads. im gunna ask the person that does the u/s to give me as much info as he/she can.. dont think i could wait the full 7 n a half hours for the results. a lil nervous just staying positive!!! will let you girls know how we go monday arvo

[bridee]

Naomi - so sorry to hear that Bailey has to go into a brace. As others have said it will go fast you will be surprised and you will be surprised how well Bailey will adjust to it. Took DD2 a couple of days to adjust but after that it will be ok. Us parents take longer to adjust than the kids. With DD having just come out of the DB bar if you have any questions please let me know so I can let you know how we handled the situation. Let me reassure you Bailey will master rolling in it. DD2 learnt how to roll at 4mths in the brace, we didn't think it was possible but she proved it was.

Good luck for Monday.

[Jesska]

Hi everyone,
Back from ultrasound.
Her left hip has 47.6% coverage, and her right hip has 56.7% coverage.
And apparently her sockets are shallow, so looks like a while longer in the harness for Miss Lahni. They want her to go for an x-ray to check a few other things out.
See her doctor this afternoon.

[MistyFying]

Time for a new thread everyone. You can keep chatting here.