Hi everyone.

Just to let you all know that we have our appointment to go back to the hopsital on Wednesday for Harrison to have an x ray - we should find out from here whether he needs to continue to wear the brace at night time. We really hope that it's good news but we are trying not to get our hopes up.

I remember our first visit to this group, we read so many stories of people who had gone through everything we were about to experience & were encouraged by the many highs (and lows) which eventually ended in success. I hope that we are heading the same way and have the finishing line in sight. I got through this 25 years ago, and thank God that modern day awareness and treatment for the condition has meant that Harrison has not had to spend the 18 months in plasters, splints and braces that I did.

We will let you all know how we get on on Wednesday; for now, our hearts go out to you all and we wish you all the very best of luck.

Laura xx