Hi Bertie,
We were told that as Ella is over 12 months, surgery was the only option. I was concerned that I initially started this process at 14months when she was walking independ. Dr Little explained that had we seen him then he would have waited until around 18months for this treatment. All I can presume is that it is an age thing. I'm sure your specialist knows what he is doing, you can always ask for a 2nd opion, we only had to wait 2 weeks to get into Dr Little. I'm sure though we are having surgery as the first option as Dr Little said that there is no point in Ellas case to do anything else as it wouldn't work, I hope he is right as the thought of surgery scares the hell out of me!! I just keep thinking that they know what they are doing and they are an experienced team.
I hope all goes well for you and don't beat yourself up not noticing, our local GP and Paed missed it too, it was just an X-ray to reassure me that picked it up.
They will be ok in the long run, really this is just another phase of their growing up, it may be a hard one, but so were all those sleepless nights and learning to self settle!! We mums are strong and will get there in the end.
Take care and keep smiling, sining also helps!!! - you can't be in a bad mood when you sing, I think I have run out of tears over this and now we just have to get on with it and be practical about it all.
Take care, let us know how you get on.
Caroline





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