Hip Dysplaysia Support Group

[z-lu]

Hi everyone
Hopefully I'm posting to the correct spot this time! Thanks to everyone who replied to my previous message.

My baby girl Zara is 17.5 months; she has been in a hip spica since 8/7/09. Her clicky hip was never picked up until she started walking (with a limp). With a bit of luck she will be going into a dennis browne brace on 11/9/09 - if the surgeons don't think her socket has developed enough she will be back in a hip spica for another 8-12 weeks.

Zara has been mobile since day 5 of the spica - she drags herself around all over the house. She can now lift her entire body off the ground; she can also swing her legs in the air (one at a time) - which can be frightening to watch! Since she's been in the spica food has been a real issue - all she really wants is milk.

There has been a lot of emotional ups and downs but we have all accepted what has happened now.

If anybody has any size 1 or 2 pants for sale (new or second hand) please let me know - I would love to hear from you. Also, if you have any good seating tips for older spica babies please let me know - the car seat is our most major issue.

Good luck to everyone!

[wysiwyg]

Hi, my little girl has been in a Denis Browne brace for five weeks and on Monday we got the great news that her left hip has gone from severe to mild/moderate so we are now allowed to take it off for baths. We rushed straight home to have a bath, 5 weeks of sponge baths which she screamed through was enough for me, and after the initial shock of going in the water again she loved it.

Alexia's mum - Sounds awful the sores on your daughters legs, a hip abduction brace sounds very similar to the Denis Browne brace my daughter is wearing (two cuffs round the legs and a bar across the back). She went straight into that at 7 weeks instead of the Pavlik because she was a pretty big baby and the opinion was is easier than the harness - and there was a significant improvement (see above) over the first five weeks - so perhaps a different type of brace will work better in correcting the hips for your daughter. We have had no problems with sores at all, was she wearing any stockings or covers under/over the brace initially? We always had little socks under the brace and then folded round it so the brace is never in contact with her skin directly. The hospital gave us one set of some stretchy stuff and the orthotist just said to cut up some old socks to use and change them daily. My old socks seemed to have lost all elasticity so I went to target and bought some cheap knee high socks and chopped them up - so she now has cool stripy looking cuffs!

So not sure if that helps, as we have had no experience with sores but thought the info might be useful.