Hi Belfie,
That's great news. I am really happy for you!
Monica
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Hi Belfie,
That's great news. I am really happy for you!
Monica
Great news Belfie - at least you were prepared for the worst going in.
We are off to the hip clinic to day for Scarlett's xray and check-up. I'm crossing my fingers for good news. I am pretty sure we are handing her brace in for good today but am not sure what the next step is. I'll let everyone know how we go...
Nicole
The news was not bad but not great either. Since Scarlett is still OK with wearing her brace at night, she has to keep it on for as long as she will tolerate it until she's 2. The doc said she showed a slight improvement which was a good sign, but there is still a 50/50 chance of an operation before she goes to school. At least it has improved...
Hey Nicole, am sorry to hear the news that Scarlett still has to wear her brace at night. I think that was the hardest thing for us too, coz they would be free all day and then you put it back on. Am hoping that her hip improves so that she doesnt need an op, seems like you have been going through this for a long time. All the best
Melissa
Thanks Melissa - yes Scarlett has been in this brace alone for over 12 months now. I was quite happy with the outcome though, as she is still quite cheerful having her brace put on at night. It is part of her bedtime routine. Now I'm trying to decide if I should put her in a big bed now that she will still have her brace on for the next 6 months...
Hi all--My 5 weeks old has been diagnosed with left hip dysplasia and was placed in a pavlik harness today. Problem is, the ultrasound they used to diagnose was from when she was 3 weeks (and she was born early so it corresponded to her actual due date) and they didnt repeat it. They said it was mild but that they just generally treat all cases to be safe. I didnt love this idea but went with it...until 4 hours had passed and our usually sweet temperament baby had not stopped screaming (a painful sounding scream/cry I had never heard her make before). She hyperventiliated and only stopped for a few minutes here and there when she exhausted herself and passed out. Then would open eyes and start screaming again. I couldnt take it and scheduled an appt for a 2nd opinion for Wed. and removed the harness. I feel like a terrible mom b./c if she needs it I know she has to be in it, but I just felt like something was wrong...So, here are my questions for those of you expereinced with this.
First, how long should I expect it to take for her to adjust (stop screaming/crying) once fitted in it? Online it suggests most babies adjust quickly to it, but she clearly was not or I have different idea of "quickly".
Second, how do I dress her with the harness on? It is a cold winter here and they said most people just put her in a onesie and sack, but usually we also swaddle her, which they said we cant do anymore...So, can she wear pants? Can they go on under the harness?
Third, how long does it take for the mom (me) to stop feeling so sad about it? I cant stand hearing my daughter cry like that and have been in tears all day.
Thank you so much to anyone who might be able to help---Amie
Hi All,
Nicole- I hope all goes well with Scarlett and the hip keeps improving so she doesn't need the surgery.
Amie- Hi and welcome! I felt so sad for you when I read your post as I understand exactly how you feel. My daughter Hayley was diagnosed with dysplasia of the right hip when she was 4 months. She had to go into a spica cast which has now been on for almost 3 months. When she first came out of recovery when it first went on she screamed for hours like we had never heard before. She finally fell asleep for about an hour and then woke up and began screaming again. This went on from 2pm until 7pm. We were supposed to stay in the hospital overnight but after her CT scan the doctor told us to take her home because that might settle her down. All the first night we were up with her constantly because she was so upset. By the next morning she had stopped crying but was not her normal happy self. However after about 48 hours she was back to her normal self and had completely adapted to the cast. It took myself and DH alot longer to adapt. I was an absolute mess in the hospital to the point that the cast technician rang me the next day to see if I was ok. I cried alot for the first few days but as Hayley became happy and adapted to it I began to feel better and slowly we just adapted to it as well. I still can't wait until it comes off but it does become easier to accept.
I'm sorry I can't help you with what to wear as we can't take her cast off and it is summer at the moment so she wears dresses and bodysuits that button up at the nappy.
I hope this is of some help and my thoughts and best wishes are with you!
Monica
Hi Amie
My daughter Scarlett was in a pavlik harness from 3.5 months for about 2 months before going into her current brace. The first night wearing her harness was a nightmare. We were expecting it to be bad, but shortly after having the harness fitted int he hospital she fell asleep in her pram and we though maybe she would just accept it without any fuss. That was until we got home. The first night she screamed constantly. Like you were saying she was exhausted and would wear herslef out from crying so much. She would close her eyes for about a minute and then when her natural impulse to move her legs kicked in she would wake up screaming. My husband and I wanted to take it off because we felt like we were torturing her. We couldn't get her to sleep no matter what we did. We even called Tresillian becasue we wanted to get someone else's OK to take it off, but they said not to so we persevered. We took shifts in the loungeroom with Scarlett in her pram with a folded quilt undernieth her. We thought the soft quilt might help her feel more comfortable. We had to contantly rock the pram or she would keep screaming. She ended up falling asleep at about 2:30 in the morning and slept for a few hour. It was a terrible night. After that she slept in the pram in her room for the next few nights so she could get used to the brace and then I gradually moved her to her cot with the quilt under her in there. I know it is against sids rules, but it was the only way she would sleep. It is hard on the parents seeing their babies like that - especially one as young as yours - but after a few days they do get back to their old selves.
As far as clothing, we were lucky that Scarlett was in her harness during summer. We were told we could only undo the chest strap to sponge bath Scarlett and with great difficultly we managed to thread a jumpsuit under the harness without removing it. We had strict instructions not to remove or adjust the shoulder or leg straps so I think putting pants on underneith would be out of the question. I have read that other people bought realy oversized elasticised waist pants to put on over the harness. I had some leg warmers and big socks that fit over her feet to keep her toes warm. I was also told the same thing about wrapping, but I did it anyway as she was already so used to it. I just wrapped her top half and left the wrap open at the bottom.
We all know how you are feeling and since you took the harness off a second opinion can't hurt, but be prepared that she might have to be in the harness to fix the problem. The short time you will both have to endure it will be worth it in the long run. You are also lucky it was detected so early as the eralier it is treated the better the results. My daughter was diagnosed quite late and is still in a (different) brace at night at 18 months old. In the early days I was counting down the days to when I thought we would be free of the harness and I used to cry alot, but it just becomes a normal part of life after a while. Soon enough you will look back and be amazed at how quickly it goes.
Sorry for such a long post...
Nicole
We had Rebeccas ultrasound today. Her left hip hasnt improved since the last one 6 weeks ago. The right hip is completely normal, the left has a shallow cup, but apparently stable. Makes me wonder what they will do for treatment if any. I was really hoping for a good result today, but it is what it is. I suppose I have enjoyed this far with her. Olivia was in her harness from 5 weeks of age, Becca is now 3 months old. I'm so miserable and its bringing up those feelings again. I cant understand why I breed kids with hip problems. And both of them have had foot problems. I know I should be thankfull that its nothing else, but it still doesnt make things any easier. If she has to be in a harness... at least I know what I am up for, its just the waiting tl its all over bit that I hate.
Thanks for listening!
Hi Melissa
Sorry I only just saw your message - I haven't been getting email notifications.
I am sorry to hear that Bexxa's hip has not improved. I know what you mean about feeling like it's yor fault or something. I am worried about my unborn child having the same problem too. Our orth told me I won't need to get an ultrasound until 6 weeks when the baby is born but I feel like I'd be paranois if I didn't do it sooner.
Like you said you know what to expect if Becca has to go into a harness. Hopefully things improve soon.
Nicole
Thats ok Nicole! I was really paranoid too about not getting that first u/s until she was 6 weeks. It felt so long away and time wasted, iykwim? Both my girls get my crappy genes, my dh has really good health and family history and mine is crap. I have asthma, eczema, allergies hips.....Olivia has that already.
Am packing about tomorrow, I really hope its going to be ok. Will let you know.
Melissa
Hi Just letting you know that rebeccas review went well. The specialst seems to think that it will resolve itself. Her thigh creases are a bit uneven and her left hip is stiffer than the right, but its stable and he couldnt dislocate it. We go back in 9 weeks to see if there is change. Thanks for listening, I'll be back in 8 weeks to vent again coz I know for sure I will be nervous!!!
Hey there! my baby boy who is 8 weeks old has been diagnosed with DDH. he was put into a Dennis Browne Bar just 2 days ago. So far he is just hating it. He gets very upset with the lack of movement, but after reading these threads I feel more confident that he will get used to it pretty soon. Putting the bar on after nappy change is the most distressing. Almost wish it didnt need to come off.
I also feel very nervous that im not putting the bar on correctly after nappy changes, but I guess you cant go to far wrong.
http://http://photos-d.ak.fbcdn.net/..._6159045_n.jpg
http://photos-e.ak.fbcdn.net/hphotos..._6099408_n.jpg
Are there many mums out there with a baby boy suffering from DDH??? I hear its pretty rare for boys to have this.
Hi guys
I just found out at my 20 week scan that we are having a boy! At least his chances of having DDH is slightly less because of his gender.
Nicole
Congratulations Nicole, hope all is well for his little hips:)
I am new to this thread, But what I want to say to you is hold on. I have worked with children with sever dissabilities. She will be fine, not to say that there will not be hardships for her. But I believe in the complete restoration of what God has created. It might not look like what we think it should look like. But he is a compassionate God!!! I have just gone though a loss of a child, and I would give anything to be where you are. I know this may not make it any easier. She has life and God gave it to her. Just rest, and know he is in control, not making her that way, but He has a plan.. She is special and don't think of that as bad. Think of it as wonderful!!!
Just had Rebeccas hip u/s and xray yesterday. We have the review with the orthopaed next thursday. The u/s guy said it looks heaps better...yay, hopefully it will be the same with the x-ray. The only thing about yesterday that upset me was with her first x-ray I requested they put a metal thing over her overies and they said that they dont do it for the firt xray coz they need a good look. I aked if it would have an effect on them, however both the people in there didnt speak much English and I didnt really get much of an answer. They said that at subsequent xrays she will have the metal piece.
Anyway will let you know how it goes. Hey Nicole, hows your pregnancy going? Hows Scarlett?
Hi guys
Melissa - it's good to hear that Rebecca's hip is looking better. Good luck next week. I had never thought about asking for metal plates. Is there information out there to suggest it could cause damage to their ovaries?
My pregnancy is going well. I'm much more relaxed this time around. Little Scarlett is also going well. She is still sleeping soundly in her brace at night but I am going to take it off in the next month or so when we move her to a big bed! Wish me luck!!! The doc said we could stop wearing it by her next visit (in July).
Hope everyone and their little ones are well.
Nicole
Hi there everyone!
Its so strange to hear the parents point of view of this disability! Im 23 years old and have suffered with the condition since birth. Unfortunately it was not spotted until I was 18 months old the doctors thought my mum was just a paranoid mother when she told them she thought there was something wrong! nice.....
Any way, Ive had about 7 operations, pin and plate etc, had that done twice as the lovely doctors did it wrong the 1st time. When I was 18 I had a major operation taking part of my pelvis out and grafting it onto the side of my hip to limit the chances of dislocation. It was an awful ordeal and I lost almost 2 years of my life trying to recover, and tbh my problem hadnt got any better from it!
I have no intention of having a hip replacement as its best to hold on to your actual body parts for as long as possible, as Im sure ur all aware of! I can walk and go out and party etc, same as any 20 something! and though It does affect me (eg when I went to New york last year, I ended up having to get a wheelchair as I was in so much pain from walking around, but Im one of those people who try and do as much as they can to the limit...not sure if thats good or not!lol!) I try and forget about it, and have to remind my friends to slow down where were out and about.
I was bullied about it in school because of my limp etc, but those people soon left my life and I am surrounded by real people now, not idiots! and all of those people are losers now (I have found out via facebook) and I now have a degree and am an editor for a television company pretty much as soon as I left university. so remind ur little ones of that, or remind yourselves. As such ordeals have made me want more from my life and do better, and things can be better, but it does help if people are aware of problems.
I have had an awful time (in my teens) trying to get jobs as no one would touch me with this disability, so I lied on my applications and said I was fine and suddenly got jobs. Unfortunately thats the way things are, it needs to be changed but sometimes we have to play the game to get work, which can be the same for anyone I guess....
I dont know what state my hip will be in 10 years time, but your can say that for any 'able' bodied person, as anyone could end up in a car accident or have many other bad things happen to them etc....so just remember that!!!!
Hope all are ok and good luck to yourselves or little ones!
Im contactable at jomichelle86@googlemail.com if u want to say hello!
Big Love!
xxx
Hi all, just thought I would let you know that we have the all clear for Rebeccas hips. All the angles and coverage are considered normal, so much so that she wont have to be reviewed. So am happy with that. Can enjoy my first baby without a harness!!!
Good luck mis_tree with your ds review....nerve racking waiting isnt it?!
Nicole; good luck getting Scarlett into a big bed. Took me about 2 months for Olivia to really settle in and she still comes in every other night.
Well I will stck my head in to see how everyone is going. Take care
Melissa x o
That is great news Melissa. You must feel so relieved! I am hoping to get Scarlett into her bed about 2 months before bub arrives so she will have time to adjust before having a brother to adjust to!
Take care
Nicole
Hi there,
I have been reading the thread - I took my 10mo dd to the doctor today as one of the ladies at her childcare had noticed that one of her legs was longer than the other. When I looked at her at home, it's totally obvious and I can't believe I didn't notice it before. Anyway, the doctor reckons her right hip is dislocated and we are off on Thursday to have x-rays and scan, then to the specialist next week.
I can't seem to stop crying - I've been reading all the info about the treatment etc, and the casts and braces just sound awful, and for such a long time! DD is so happy and active - crawling and chasing her older brother around, and I dread her not being able to move around freely for so long. i keep looking at her now and thinking how perfect she looks now and how much life is going to change for her and bursting into tears.
Is she more likely to have a spica cast as she is older (10 months)? Or could she have a brace given it's only one hip that's affected (I think)? I know we have to wait to see the specialist to get all the answers, but I am killing myself reading all the info on the net and expecting the worst (ie surgery and months and months in a cast...)
Bertie
Hi there,
I have been reading the thread - I took my 10mo dd to the doctor today as one of the ladies at her childcare had noticed that one of her legs was longer than the other. When I looked at her at home, it's totally obvious and I can't believe I didn't notice it before. Anyway, the doctor reckons her right hip is dislocated and we are off on Thursday to have x-rays and scan, then to the specialist next week.
I can't seem to stop crying - I've been reading all the info about the treatment etc, and the casts and braces just sound awful, and for such a long time! DD is so happy and active - crawling and chasing her older brother around, and I dread her not being able to move around freely for so long. i keep looking at her now and thinking how perfect she looks now and how much life is going to change for her and bursting into tears.
Is she more likely to have a spica cast as she is older (10 months)? Or could she have a brace given it's only one hip that's affected (I think)? I know we have to wait to see the specialist to get all the answers, but I am killing myself reading all the info on the net and expecting the worst (ie surgery and months and months in a cast...)
Bertie
Hi Bertie
I am really sorry to hear your news. As I'm sure you've read (and will find out from people's replies) that all of us have been in your exact situation crying over their baby thinking about how everything will change. I spent the week between finding out my daughter had ddh and getting her into a pavlik harness (at 3.5 months) crying constantly. Not only was I sad for her but also myself. I thought why does this have to happen to me with my first born?
You will hear this plenty of times (and it doesn't help right now) but no matter what treatment your bub needs, she (and you) will adjust to it relatively quickly. There will be someone on this forum who can give you advise about feeding, dressing & entertaining your bub if she is in a brace or plaster.
Make sure you let us all know how your appointment goes. We will all be hoping for the best for you.
Nicole
Hi All,
Bertie - I agree with nicoli - the tears are a natural reaction. You just have to think that getting her treated is the most important thing.
I have never posted in this thread before - but have been reading with interested. I have a 20 month old son that was diagnosed with hip dysplasia at 3 days of age. He was in a pavlik harness for 13 weeks and has just got the all clear. :dance:
We are due to have our next bub in 4 weeks (a girl). None of the doctors that I speak to are able to give me any information on the chances of her having hip dysplasia. So I thought I would ask you all - did your second have hip dysplasia or was it only your first? Or do you know much about the chances?
Thanks in advance.
Hey Bertie, I am sorry to hear about your news, It will take some time adjusting, however in the long run it will be for the best. I think I had more trouble adjusting than my dd! I did cry andcry and each visit to the specialist I cried. Its natural to have these emotions. Sorry I am being brief but got 2 girls mucking about!
Hisista; my story is Olivia my first born was diagnosed with ddh at 3 days old. She was in a Pavlik Harness until 8 months old, crawled by 9 months and was up and running at 12 months. She got the all clear at 19 months. It was the longest time of my life, but we got through it. Rebecca my second girls was born about 3 weeks after Olivias final review. The specialist suggested she get reviewed when she was born as it is more common that a female sibling will have hip dysplasia as well. So we had her assessed at hospital. She ended up having a mild form, requiring no treatment and we recently got the all clear.
I hope that helps....got to feed the troops, I wish you all the luck
It is true that it is harder for us to adjust than for them. My son just took it all in his stride..
Thanks for that minimatron. This baby is in a much better position so I am :pray:that she will be fine. This baby will be seeing the specialist too so we will know early on if there is a problem.
Hisister- neither of my girls were breech, but both had hip dysplasia. Oh and by the way I was the 3rd child and had it and none of my 7 brothers or sisters had it....funny how it works!
Hi,
Thanks so much for your support. I did have a couple of questions re specialists / orthopaedic surgeons... My GP yesterday had to phone around several, before she finally was able to get us an appointment with a Dr Kuo in Randwick (Prince of Wales Hosp). She had tried Dr Little first - I've seen a couple of you mention him - but he was booked up for ages.
Has anyone heard / dealt with Dr Kuo? Did you get your specialist from your GP or did you phone around too? Any advice in this area? I was a bit taken aback that they all had such long waiting times to get appointments (I thought it was just obstetricians that were like this!!!)
Obviously I want to make sure we are getting the best possible care for dd...
Thanks,
Bertie x
Hi Bertie
We were refered to a local orthopaedic surgeon initially because our paediatrician knew it would take a while to get in to see Dr Little at Westmead and he thought it was best to start some sort of treatment as quickly as possible. We saw the local guy (who didn't specialise in children) for the first 12 weeks while she was in her pavlik harness and he then refered us on to Dr Little to manage her hips as her problem was going to requre ongoing treatment. We then seemed to get an appointment quite quickly with Dr Little. He is always very busy at the hip clinic which is held on Tuesdays after 1pm.
My suggestion would be to see the other doctor first and see what he says. The sooner you know what treatment is reuiqred and get it started the better. I know there are other people who have seen another doctor at the private medical centre at Westmead but can't remeber his name?
Regarding the subsequent child question, I was told by Dr Little to have my baby (boy due in August) checked at 6 weeks to see if there are any problems. I believe that ddh occurs predominantly in girls, but since it is in the family, any other siblings need to be monitored. I had a normal pregnancy and delivery with my first, no history in the family or anything, but I guess these things just happen. I'm a little bit nervous about the baby also having it, but realise I can't do anything about it anyway so just need to relax.
I hope you get in to see a specialist soon
Nicole
Thanks Nicole - we'll give this guy a try and see how we go...
We had our first x-ray and ultra sound today. The radiologist did the ultrasound first, in case they could avoid the x-ray. Olivia screamed and screamed when they were doing the ultrasound - it was awful. I kept thinking, if she is this bad when they are just holding her legs still and not even hurting her, what's she going to be like when she gets put into a cast?!? When the ultrasound showed there was definitely something wrong, they did an x-ray too. I made my husband go with her, as I just couldn't face hearing that screaming again as she would be put in some sort of restraint for the x-ray - I know, I'm a total wus. In fact, she was totally ok with the x-ray.
Anyway, her left hip is fine, but she has a shallow socket at her right hip, and her right leg isn't in the socket at all, but pushed up right above it which is why her right leg is shorter. I think the radiologist was a little surprised it hadn't been picked up before, which just made me feel like a terrible mum, and I can't believe we haven't noticed anything before - it seems so obvious now. I just assumed everything was developing ok as she had been meeting all her milestones and was crawling around so well etc...
So I am thinking a cast is almost certain, if not surgery too - I'm absolutely dreading it and I'm worried I'm not going to be able to handle it at all - seeing her upset makes me REALLY upset, and this probably makes her even worse! It breaks my heart everytime I see her smile, thinking how upset she is going to be.
Question to those of you with older babies in casts - do any of your children go to day care? Olivia currently goes 2 days a week, and I was assuming that she wouldn't be able to go, but speaking to a friend of mine today, she said why on earth not, and surely the best thing would be for Olivia to enjoy her normal routine (she does love day care) so as not to disrupt her life too much? What do you think? I was all for taking 3 months off work and basically molly-coddling her the whole time she is in the cast, but maybe that's not the best thing for her after all?
Bertie x
Hey Bertie, you are not a terrible mum for not picking it up. Its not something that you can see plainly and if she has reached all her normal milestones then why would you pick it up.
As for day care, I shouldnt see why not. Just ask your carer. Is Olivia in Family Day Care or a big centre? My Olivia was in the harness but we kept her routine as normal as possible. Good luck.
Hi all,
I am sitting here today in total confusion. My dd2 19mth has been diagnosed with DDH, it has only just been picked up. We are off to Dr Little tomorrow for our first consult. I am feeling lost - i have read so much and there has been so many good things then i find info about cases that haven't worked after several surgeries. I really need some support. I'm not sure how to deal with all the info.
Can anyone help.
Hi cjoe, welcome to BellyBelly. I am sorry to hear about your daughter and the late diagnosis of ddh. I hope that you are able to get some answers tomorrow from Dr. Little. Apparently he is very good ( from what I have heard on here). I am unable to give you any advise on what happens with surgery as my dd was in a harness from 5 weeks old to 8 months. I do know that all these emotions are completely normal, there are loads of questions you will be asking, why my dd, why us, why wasnt it picked up earlier, what happens next. I think you'll find the girls in here will offer you lots of support, which you will need...especially initially and as specialist reviews come up.
Good luck tomorrow and let us know how you went,
Melissa
Hi cjoe
We all know how you are feeling at the moment. It's hard to take everything in. Make sure you have a list of things you want to ask Dr Little and when you leave write everything down or you will probably forget.
We see Dr Little for our daughter Scarlett who was diagnosed at 3.5 months. She has been in a harness and brace since then. For over a year she has only worn the brace at night, but we have just taken it off for good. We have a review in July (just before she is 2) and will now need annual reviews until she is 4 to see if she needs an operation as her hip has been very slow to recover.
Like Melissa - I can't give you any advice on surgery I'm afraid. I do know that all the other mums that have been through it have been amazed at how well their little ones adjust. 19 months is a tricky age as they are starting to understand what is going on more, but maybe that will help in explaining what is happening through the process.
Good luck at your appointment - let us know how you go.
Nicole
Hi Melissa and Nicole,
Thank you so much for getting back to me, it is wonderful to hear from others going through this.
Our trip to Westmead has ended up with Ella being booked in for surgery on June 23rd. She will be having a Pemberton Osteotomy, they have to open up the hip, reform the socet, put in a bone graft to hold it in the right shape and cast her chest to toe for about 6 weeks. We are hopeful that this will be all she will need in the form of casts, she may need bracing at night after that. So all in all I feel much better, we were told that at this age this is the best option. Dr Little was wonderful to talk to, he gave us a lot of confidence inthe team.
I hope both of your dd's are recovering well. Again thanks for your support, it really is appreciated.
Caroline,
DD1 almost 3, DD2 19 months
Hi Caroline,
Sorry to hear about your daughter - we are going through the exact same thing. My daughter has just been diagnosed at 11 months, and she will be put into a cast (12 weeks!) on 22nd - just the day before you! We are at Sydney Children's Hosp in Randwick though.
Our specialist thought surgery would not be necessary for her, and will just be pushing the bones back into their right place. I know it is hard to compare diagnoses, as I'm sure there are loads of different ways their hips can go wrong, but can you tell me why your daughter needed surgery? Is it that she was a little older? Is she walking yet? Like you, I have read lots of stories where treatment didn't work and they end up having to have multiple surgeries / casts, and I really want to avoid that if possible. I'm sure my specialist is just fine, but I hope he's doing enough iykwim...
At least you only have 6 weeks of cast - that must be a good thing!
I just posted in the other Hip Dysplasia forum, with loads of questions - I imagine you have the same questions, or if you've already been talking to people you may have some of the answers I need?!?
Anyway, like you I am trying to put on a brave face - it is not forever, and our beautiful daughters will be just fine at the end of this. We just have to get through the next few months, which I know are going to be traumatic. I wish we could get on with it though and didn't have to wait until 22nd/23rd!
Good luck,
Bertie
Hi Bertie,
We were told that as Ella is over 12 months, surgery was the only option. I was concerned that I initially started this process at 14months when she was walking independ. Dr Little explained that had we seen him then he would have waited until around 18months for this treatment. All I can presume is that it is an age thing. I'm sure your specialist knows what he is doing, you can always ask for a 2nd opion, we only had to wait 2 weeks to get into Dr Little. I'm sure though we are having surgery as the first option as Dr Little said that there is no point in Ellas case to do anything else as it wouldn't work, I hope he is right as the thought of surgery scares the hell out of me!! I just keep thinking that they know what they are doing and they are an experienced team.
I hope all goes well for you and don't beat yourself up not noticing, our local GP and Paed missed it too, it was just an X-ray to reassure me that picked it up.
They will be ok in the long run, really this is just another phase of their growing up, it may be a hard one, but so were all those sleepless nights and learning to self settle!! We mums are strong and will get there in the end.
Take care and keep smiling, sining also helps!!! - you can't be in a bad mood when you sing, I think I have run out of tears over this and now we just have to get on with it and be practical about it all.
Take care, let us know how you get on.
Caroline
:pray:
Hi Bertie,
Only a couple of days to go now, i hope all is well with you and that the next few months are not too hard on you, everyone keeps telling me that the children cope better than we do. We should be back from Westmead next weekend 27th June. I have my DD1 3rd birthday party the following week so at least I will be kept busy. We had to postpone it for DD2 surgery.
Take care
Caroline
Hi Caroline,
I have been thinking of you too - not long to go now! I think the worst is the anticipation - at least once our poor babies are in their casts, we can begin to get on with life and count down the days until the casts come off...
We are actually celebrating Olivia's birthday today - her birthday is not until the 30th, but I wanted her to have a lovely celebration without the cast. Just a very small family gathering, but she will have fun opening her presents and getting her first taste at cake! I did have some trouble choosing presents though - tried to get her some stuff that would entertain her over the next few months...
Best of luck to you and your DD on 23rd - will you go in with her to the anaesthetic room? I'm struggling with this at the moment - have heard it's very upsetting, and maybe should send daddy in with her, but I want to be with her when she needs me!
Bertie x