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Thread: Hip Dysplaysia Support Group

  1. #73

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    Hey Mis-tree,

    I remember when Olivia came out of her harness she had a bit of a clunck for a while. I cant remember what was said about it, but yeah definately ask. They wouldnt have taken him out of the harness if he wasnt ready. Sorry not much help!

    Melissa


  2. #74

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    When DD came out of her pavlik harness her hip clicked, I was so worried called the Dr and he said it would be just tendons moving, he said unless you can actually feel a bone popping out all would be ok. The clicking stopped after a little while (can't remember how long) and everything has been fine. She got the all clear a month ago.

  3. #75

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    Ask for an ultrasound. That is generally what they do for babies under 6 months. They can tell immediately from the ultrasound if its out or not. This is what we had done with only a 'suspicion' from our clinic nurse that there was a clunk and the ultrasound showed up a dislocated left hip alright....not saying that is what yours will be, but just that you can request an ultrasound whether they think you should have it or not. It will give you peace of mind.

    Good luck.

  4. #76

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    Mis_tree- 70% coverage is pretty good and he wouldnt have come out of it at lesser coverage. Now that Dee has jumped on and reminded me of it- mine and her dd came out of the harness at similar times- it was tendons moving. Get the health nurse to have a good feel. And you said you were going to physio, so they will be able to tell you if there is any suspisious things happening. Yes you can get another u/s, but seeing that its been scaned prior to his harness coming off, a physical check up might be the intial way to go.

    melissa

  5. #77

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    Good luck with it and am glad you got some action. Olivia started with something like a 26% coverage and after 6 and a half months of harness she was all good. She came out of it around 8 months old. Hopefully its nothing, let us know how it goes.

    Love Melissa

  6. #78

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    HEy,

    I am sorry that you got some bad news. i dont think it can reverse itself, maybe they got it wrong. I hop[e you can get some answers soon. Its very rare that babies get growth that quickly. Most babies i have come across stay in the harness much longer than 6 weeks. I am really sorry for you, but am also glad that you were on the ball enough to get it checked out. Hugs to you.

    Melissa

  7. #79

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    Definately get a second opinion or change doctors. i dont think bone can reverse. I am hoping you get your answers tomorrow. Good luck. I know its disappointing, but better to fix it now iykwim...

  8. #80

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    He missed that???? Wow, I'd loose all confidence in him too. Let us know hw it goes tomorrow. Take care
    melissa

  9. #81

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    thats a bugger, make sure you get the answers you want especially about why he was taken out so early. Hugs to you and good luck

    Melissa

  10. #82

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    mis_tree - sorry to hear this...i hope the harness works.. my friend's daughter was in the harness but it wasnt working well for her. so they had to go for surgery, i think at this stage she's recovering quite well!

  11. #83

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    Mis_tree - so sorry to hear someone has made an error. Our specialist said it was virtually impossible for anything to go wrong once it is corrected and if something was to go wrong it would take years for it to show up on x-ray so that is why we don't need to go back to specialist until DD is 5yrs. Is your specialist an Orthadpedic Surgeon ours also was a paediatric specialist? My understanding is they are the Dr's that specialise in this condition and therefore are they most trained to know when kids are ready to come out of the brace.

    I really hope you get some answers.

  12. #84

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    WTF!!!!!!!!!!!!!!! and he calls himself a specialist!!

  13. #85

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    Hi mis_tree, I've just read all your posts from the last couple of weeks. (For some reason I don't get email notification of new posts???). You must feel so frustrated and upset about the whole situation. You said you had to go to Syndey for your next step. Are you going to Westmead Children's Hospital? That is where we go with Scarlett and they are excellent there. At least you should get things sorted out once an for all. We also started out with an orthopaedic surgeon and he wasn't that much help either. He ended up referring us on to the hospital as tey are the experts. I don't know why we didn't go there in the first place.

    Anyway, good luck and hopefully things will be sorted out soon.

    Nicole

  14. #86

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    Mis-tree you must be so frustrated but the Children's will certainly sort it out. I've been told it takes a specialist ultrasound person to be able to know what they are looking for. In Melbourne I was told there are only a couple of ultrasound places that do the hip ultrasounds on babies and are able to properly pick it up. So if this is true the Children's will be properly trained coz they will be doing them regularly. So you will have a specialist that specialises in paediatrics, which again this issue is largely only diagnosed in children so again you will get the proper answers. Just trying to look for the positives in this for you.

    i know I am very grateful for being able to use the Children's hospital (in Melbourne) rather than rely of specialists in the country (I'm orginally a country girl). Good luck!

  15. #87

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    Hi Mis-tree,
    so sorry to hear you are having problems. Must be very frustrating and upsetting.
    I haven't been in this thread for ages but get the updates through my email and saw you were going to see Dr Bellemore. He is a brilliant doctor. We had him for Hailey who was diagnosed at 6 months. She went into a hip spica (plaster) for 3 months and had an abduction brace on for 22hrs a day for 9 months after that. She has just been for a check-up again with him in May and we now don't have to see him for 2 years as everything is coming along nicely.

    He is a very calming doctor and you can ask him anything and he'll explain even your simplest questions. He is also the head of orthopedics at Westmead so you're getting the best of the best as far as I'm concerned. He also has his own website so just google him. Are you seeing him privately or through the public system? I initially went through the public system at Westmead but found it very hard to have to make our follow-up appointments when they were required to be close together (i.e. every 2 months) so in the end just went with him privately.

    If you have any questions at all just PM me. I'm not sure if it's still there but he was using an ultrasound place right next door to his offices at Westmead. They told us straight away that Hailey's hip was fully dislocated. Luckily I had another mother in my mother's group at the time that was going through the same thing at the same time, so I hope you have some good support around you. You will get through it. Hailey learnt to crawl in the plaster and WALK in the brace!!! She didn't fall back on any development other than being a little wobbly on her feet and around the jungle gyms for a little while.

    I hope you have a positive outcome with Dr Bellemore.

  16. #88

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    mis_tree

    I just looked up Dr Belmore's website - it's great. He even has patient handouts to download. We actually see Dr Little at Westmead who runs a 'Hip Clinic' every Tuesday. You will get the best care there. The people doing the ultrasounds and xrays are great. You will also meet plenty of other parents going throught he same thing in the waiting room!

    Good luck. When is your appointment?

    Nicole

  17. #89
    Livs Mum Guest

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    Hi Everyone
    Just wondering if anyone has any ideas on activities for an 18mth old in a hip spica? Also any clothing suggestions.

  18. #90
    ell Guest

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    Hi my daughter is two at the end of this month. She was diagnosed with bilateral hip dysplasia at 6 months. She went in for a closed reduction at 8 months and put in to a spica. After 4 weeks she went in for cast change and to try put her right hip in a better place it was found that her hips were to unstable and she was referred for an open reduction in melbourne. At eighteen months after a phone call to the hospital it was found that the referrel was not sent. So we first met the doctor in melbourne in july this year she had her open reduction in September. She came out of the operation not real well and was not real good all weekend on Sunday it was found her right hip was not in postion. So she went back in to sugery on monday and this time both hips are in place and she came out real well hardly needing any pain killers. We went home on tuesday. She has now been in her spica for nearly three weeks and doing well has no trouble entertaining her self. She goes back over to melbourne on her birthday of all things for cast change and ther is talk that her right hip may require more surgery cross fingers.

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