Hi Crissty thanks for telling me your story.. yeah going alright.. took Imogen in for her post op checkup yesterday and ther eis a problem with the shunt.. minute neuro surgeon saw it he said there is fluid building up around the shunt and valve.. she had some tests done and it appears blocked.. so back into hospital tomorrow to have it taken out, fixed and put back in... so hope it works this time.. was praying that it would be a while before she had a blockage... feels so sorry for the poor thing, only 12 weeks old tomorrow and already having her second operation..
Chrissy how do u know why they decided to do a third ventriculostomy & not put a shunt in? glad to hear that his doing so well.. With Imogen they didnt think it was hydrocep at first, were just monitoring her after birth but once the neuro saw her he confirmed it was and wanted to vp shunt inserted asap.. i found an american website thats a support service for families with hydrocep.. ill have a look for it and let you know.. i put on posting on that and have been in email contact with quite a few mothers in america who's children have hydrocep... its really good being able to talk to them and share experiences...
take care..