Hi girls thought i'd write an update.. Imogen has been ok since the shunt revision, turns out the valve disconnected from the tubing and has been fine since. They have been testing many different things just to make sure there is nothing else wrong. THey know she has a brain abnormality, thining of the corpus collsum and a genetic problem 6q deletion. She has regular physio as she is a bit behind and is a bit weaker than she should be but is progressing pretty well considering. She rolls around ont he floor, is constantly blabbering and looks like she is close to sitting up on her own so pretty close for the milestones for her age
A few days ago she had a seizure and stopped breathing, the episode only last about a minute and she came to by herself afterwards which was a relief,.. so another night in hospital, more tests done to figure out what happened but they couldnt find out the cause and she was discharged yesterday.. she has been in good spirits ever since.