Oh wow Shannon that is fantastic news, those times in between the medical madness and you get to have a "normal" baby again are so precious, I am so happy for Jess and you that you've been getting the good outcomes from it all!!!

IKYWM about the doctor appointments, we seem to see 1 doctor or specialist every week or fortnight, it just seeems crazy even when he is doing fine..of course I am happy to have them monitoring Felix progress but it's time spent doing that stuff that takes away from other things you could be doing..

Just wondering if you knew about the Carer's allowance? it isn't means tested and is tax free? Jess would be eligable as she has a long term condition? I'm not sure if I mentioned this or not to you before???

:hugs: to you both!