Finally getting somewhere.

We saw the doc on Tuesday afternoon. The most important thing to come from the appointment is she has started to gain weight so the polyjoule and soy formula powders are doing there jobs when we get them into her. She is eating at least 2 full meals a day which is also good.

Her therapists at school recommended getting a peg at least to supplement her during illness and summer (she wont eat/drink when it is too hot) and for medication (which will hopefully reduce the time she is ill)

We finally discussed a peg with the peadiatrician and he said it may be the answer given the low weight gain over a long period of time but doesn't want to do it just yet. We are waiting to see a dietician again at the end of the month. We will then see him again latter in the year (unless she stops eating again in the mean time) if her weight is still as low as it is now then we will schedule the surgery.

So for now I am going to get busy sewing body suits and pj that she wont be able to get hold of the peg because she will try to rip it out until she gets used to it and I am expecting the surgery to happen even if the doctor is still unsure.


We shall see what the following months bring us.