Update:
We have seen the pediatrician and he has given me information to read and go back to him with questions. He isn't too keen to put a peg in yet but at least he has had the discussion with us and he is open to considering it if we cant find another solution. We see him again 18th August with my list of questions and list of pros/cons I have written up, as well as feedback from her therapy/school team.

We will be seeing the dietician next week, who will weigh her again to see if there is anymore weight gain.

The plan at this stage is to see if she continues gaining weight (which I doubt will happen) and then book in for surgery at the end of the year if we cant get a solution.

The biggest issue is she is still getting throat infections every two weeks and not eating for 2-3 days (which means she losses the weight she has gained in the last fortnight). The more we force the issue of eating/drinking the more she refuses to eat/drink.

I will give an update again after we see the pediatrician.