Thanks for all of your responses!

What you're doing already is the most important thing - thinking about it and discussing it within the family. Children can't go on the register, but the main thing is that parents discuss it with each other and try to come to a decision, only to be recalled if the tragic unforeseen happens.

My family is currently at the Australian Transplant Games in Geelong. There are many people here who have agreed to donate their family member's organs. There is such gratitude in the atmosphere at these events.

It's so wonderful that you were a bone marrow donor, whatever the outcome was. I bet that the family of the child who received the transplant were just so grateful to you for your kindness, and it would have helped them to cope, knowing that somebody cared enough to give. After I'm finished breastfeeding my youngest, I'm going to donate bone marrow too - I've meant to do it for years! Your post is a great reminder of the need.

This week, my now healthy 3-year-old Rose will run a 10 metre race in honour of two people: her liver donor, and the sweet little baby girl who died on September 1, waiting for a liver transplant.

Thanks again for reading my emotional post, and for taking the trouble to respond. It means a lot!

Lynne
www.biliaryatresiababy.blogspot.com