Lynne, so glad you little girl got her life saver. I was a peadiatric transplant specialist nurse here in Sydney. I am also a huge adovcate of this often delicate subject.
I know for many it's a hard choice to have to make, and sometimes religion and other beliefs come into it, and I'm totally oK with that, but for the rest of the population - the slogan is, "Don't take your organs to heaven - heaven knows we need them here".
It's really important you discuss your wishes with your NOK as they are the ones who will ultimatley sign the consent.
Good luck to Rose in her race Lynne.