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Thread: Sacral Dimple

  1. #19

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    We saw the surgeon on Friday. We are booked in for an operation in February. He called it "an excision". So he'll excise Fergus's 2 sacral dimples while he is under GA for his operation to fix his 2 hydroceles.


  2. #20
    Love My Baby Guest

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    My DS has one where you can't see the bottom. When the paed checked him out before we left the hospital she booked him in for an ultrasound. I was so worried! But we went to the ultrasound and everything was fine.

    To be honest, the ultrasound guy didn't seem like he knew what he was doing and when he got someone else to check it out he seemed pretty certain it wasn't it but didn't take much time to look at it, so I am still worried that they didn't check properly .

  3. #21

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    Kirsy - lachlan too had a hydrocele fixed at the start of the year. Good luck for the surgery in feb

    Love

  4. #22

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    Thanks Kathryn. How long was Lachlan's recovery time?

  5. #23

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    Seriously just a matter of hours. He had surgery around 10 in the morning and was back home and riding his bike of all things by 4pm that afternoon. was naturally very sleepy for the first few hours out of surgery, but as soon as he ate he came alive.

    Love

  6. #24

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    Wow aren't kids amazing. Seeing him riding his bike so soon must have been a huge relief for you all. xx

  7. #25
    baby4 Guest

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    Hi There
    I Was Very Happy When I Seen This Forum I Have An 8 Week Old And He Has A Sacral Dimple And To Be Blunt Ive Been Sh#t Scared I Am Now Very Disapointed Now With The Hospital As I Also Was Told Hes Got A Sacral Dimple And Thats All That Was Said They Didnt Even Show It To Me, I Didnt Even Know What They Were Talking About Until My Local Gp Did His Check
    The Doctor Says He Has To Be Examined By A Specialist
    I Know Exactly How You Feel Especialy When Everyone Keeps Reminding Me That Its Linked To Spina Bifita
    One Thing That I Do All The Time Is Play With My Babys Feet I Let Him Push Off My Hands Because The Main Thing With Spina Bifita Is Being Paralised So The Way I Look At It Is If Your Child Can Push Off Your Hand With There Feet Or They Are Ticklish There Shouldnt Be A Problem

  8. #26

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    Just give a quick update for you all

    Lachlan had his u/sound and xray on the 29th of November, which was a Wednesday I think. Got a phone call on the Friday and had to see GP on the Monday. (week ago today).

    Lachlan's dimple is tethered to the coccyx and he has very slight spina bifida occulta (a variant of spina bifida) but not enough to cause him any concern. GP wanted us to get a 2nd opinion on what he said with a proper Paedtrician (even though we trust his verdict) and that appointment is wednesday night.

    Love

  9. #27

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    All the best Kathryn xoxo

  10. #28

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    Nope nothing like that at all Shannon unless the paed says tomorrow.

    Love

  11. #29

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    Okay we saw the paed, and he would like us to have an MRI done to get a clear picture of the area to see if the dimple is actually attached to the coccyx or not as the ultrasound was inconclusive in his opinion. He has agreed to wait 12 mths to see how he develops over the next year and to make sure there are no issues with toilet training etc.

    Apparently the tether doesn't grow with the child, so when the child does grow the tether begins to pull on the coccyx which then creates spinal problems. So if an MRI in 12 mths finds it definitely attached then we will have to look into having it snipped.

    He was thinking of doing the MRI earlier, but said they would have to give lachlan anesthetic or a sedative of some sort to keep him still for the 10 mins the MRI was being done, which I didn't want to happen so that is why he agreed to get reviewed in 12mths then go from there.

    Also he said that his testicles were very high, so we have to see if they drop tonight when Lachlan is in the bath and if so that will be fine and he will review that again in 12mths too and if not then it is back to the GP to sort that out

    Love

  12. #30
    monicat Guest

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    Hi! I am new to this site. My 7 year old son has a sacral dimple. He recently had an x-ray done of his lower spine and has been diagnosed with spina bifida occulta (a very mild form). When he was born I was very concerned about his dimple but every doctor we spoke to said not to worry about it. He has had trouble with urinary incontinence and that is what made the doctors search further. In every other way he is a happy healthy boy. He is scheduled to have an MRI in the next couple of weeks so we will soon know the extent of his spina bifida.

    What really concerns me is that he has three younger siblings (5,3 and 1 yrs old). All of them have sacral dimples. The 5 and 3 yrs olds are both fully toilet trained so are showing no unsual symptoms as yet. I am really worried that they all have some degree of spina bifida occulta.

    I am desperate to talk to others who have any experience with this.

    Kathryn, I have been reading your earlier posts. Has Lachlan has his MRI? I hope all goes well.

  13. #31

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    We saw another paediatrician for our 1 year follow up, as the one we originally saw was no longer practicing where we take him. He seemed to think it was fine. Lachlan is now 4 and has had no issues at all with toilet training or anything like that. We did have a note from our GP not long ago saying to come in and get it re-checked, but i am pretty bad with making doctors appointments due to the long waiting time so usually wait till we have to go for something else as well then make it a double and get everyone sorted at once.


    i was told originally if you can see the bottom of it then there is no need for concern. Can you see the bottom of the dimples in your other children ?

    Love

  14. #32

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    Wow, it has a name!
    Caden has one also, and the pead just checks that it has a "bottom" and is sealed. Apparently it is the last thing to "zip" up once the spinal cord has been sealed, and is quite common.

    I thought they could check for spina bifida in utero?

    I also thought it was genetic, as it can be passed down in families. I thought I would take extra folate next pregnancy just in case, but am not too worried as my doc isn't worried.

    Good luck!

  15. #33

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    2 of my children have sacral dimples, and Zaviers is quiet deep.
    We too had an MRI and were told it is tethered to his spinal column, but not his spinal chord. So there is nothing we should do, but keep an eye on it. We were never told it may need snipping. I wonder if i should have it all re-checked, just in case??

  16. #34
    ilic Guest

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    I have just found this site and its great to find other people with Spina Bifida Occulta - My paed told us that my daugther had a tethered spinal cord because she had a small birth mark on her lower back which was a little hairy. After ultrasound and MRI they have confirmed that her spinal cord is tethered. Saw Neurosurgeon yesterday and he said she had Spina Bifida Occulta with a tethered spnial cord. He suggested we operate before 6 months of age because as she grows the bit that is tethered can stretch and lead to complications like problems with her legs and bowel. After reading many things we have decided to do the operation as once there is a complication from stetching e.g. loss of bowel control it is not reversible even with the operation. The operation can stop if getting worse but the damage is already done. Some people have to cathadarise themselves for life so we don't want to risk this but there are also many risks with the operation like infection and meningitis as they have to cut through the spinal bone. She will then be monitored over the years as there is a small chance it can become retethered. Operation is on 6/11/08. I also took folate for 5 months before birth and 3 months into and no family history of Spina Bifida. My DD is only 15 weeks old but we know that this has to be done so trying to be positive.

  17. #35

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    Goodluck with her upcoming operation. Let us know how you get on

  18. #36

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    Sep 2008
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    I recon I have a sacral dimple. It is a dimple in my bum crack, but right near the top. Mine is not deep, maybe 1/2 to 1 cm, it literally is like a dimple. I thought everyone had one (tho TBH, am not really in the habit of sticking my fingers into other peoples bum cracks)
    Is this something I should let my doc know about?
    Ta, Shell

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