I had forgotten all about this thread but thought I would post what's been going on with us.
DS saw 2 paeds and got blown off by one and the second one diagnoised Pervasive delevelopment delay (and basically told us he didn't believe there was really much there but he would give us this dx to get some help at school)
After lots of umming and ahhing and swaying between feeling like a hypochondiatic mother and tearing my hair out as to why no-one else could see what was going on here a OT actually rang us. I had been told she was excellent and had put her name down on some school forms stating we would be seeing her but hadn't followed through with the mixed messages.
Anyway she is AMAZING! It helped tha Xanny was having a "bad" day the day of her assessment (vs the awesome day he had when we saw the paed) She was disgusted that the paed had blown us off and went through a lot of sensory processing disorder stuff with us while DS interacted with all of her "toys" weighted blankets, vibrating cushions tampolines high chairs, fidgets and widgets - he entertained himself for 3 hrs while she sat and assessed him.
It was so nice to sit in a room with someone who understood our child and what we go through nearly everyday! She has lots of things we can use at home - vibrating cushion to sit on at school and during dinner, weighted vests and blankets to calm when things are upseting and she is also working on his low muscle tone and speech problems (interesting to note that after 3 hrs of "therpy" - which he loved - his language was vastly improved - he could get whole sentences out without stumbling repeatiing or stuttering! Amazing difference. Anyone in Townsville area highly recommend Jillian Balyntine!!!!!
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