Sorry I have no advice or anything, DS1 has only just turned four (we've had a diagnosis of SPD (he has issues with all sense processing except visual) since 20 months old and a diagnosis of PDD-NOS for 3 months now) It can be quite confusing on where to go now, but hopefully you find things will fall into place.
well, just back from his appointment with the optometrist. I wasn't the behaviour side of it, just the normal vision exam. Anyway his eyes are still the same, some focusing issues but teh glasses he has (refuses to wear the most of the time) are still fine. Thing is though, He has the behaviour side appointment next tuesday. but today the guy (who does it & seen him today) didn't really seem like he thought he needed it. I told him of our recent pead appointment & his thoughts with Asperges & the visual processing disorder. But he said that Evan worked well 1 on 1, didn't seem to have any social issues etc & does he have any ADD issues? So obviously he doesn't think its Asperges at all. But I thought who are you to question me, his mother & the pead?! Yes he workes well 1 on 1 & doesn't appear to have any social issues. He does come across as very outgoing WITH ADULTS but the boy has no friends his age, is unable to make friends & doesn't understand why.
Gah, its really left feeling like I am going to be wasting my money next week.
Im sick of people thinking he is fine & questioning my concerns. **** I have 5 kids (almost) do they really think I have time to be stuffing around for the "attention" ?! I am following up avenues that have been suggested by those who interact with him most. Im not about to spend my days filled with appointments we can't afford financially or time wise just for fun!
FJ - welcome to the world of ASD, I've heard it said so many times that its not really there, that its a behaviour thing, or that they are "normal" and it is a parenting thing.... when you start having other children, you notice and know when something is "different"
you know whats funny. When Evan was a baby/toddler we use to joke about how "domestic & industrious" he was. But now I can look back & go hmmmmm yeah not quite the neat freak we thought. Well it wasn't the reasons for it.
Iain is also like this now. He is very similar to Evan as a toddler actually BUT the big difference is Iain is affectionate where Evan never was. But Iain is very particular about things. He likes things to be where he thinks they should be.
Evan now, can't keep his own things tidy but is particular about other peoples things. he spends his day at school picking up other peoples belongings or rubbish etc, yet his own desk/area is a mess.
But hey, He socialises well with the optometrist. So he must be fine. I wonder if I can get his address & arrange a sleep over because obviously he can be Evans new (who am I kidding, new? ONLY) best friend! Yay! all his problems are solved.
Oh I have thought this along. but got fobbed off by everyone in NSW. Everyone except the one person who wasn't in a position to give his opinion. His counsellor. He often asked if I had thought of Asperges & we spoke of it often. But Unfortunately he wasn't in a professional position to give us what we needed.
I did start to doubt myself though after everyone kept saying it was just his anxiety.
We just had the p&t interview at school for both boys. Poor Evan. He is doing "ok" not great but ok academically. But socially they are concerned. Apparently he spends his lunch/play times hanging around the classrooms which are locked just waiting for the chance to come in. Even asking to stay behind & do work when other kids are being punished by missing out on play & finishing work. He just doesn't want to be out in the playground with other kids.
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