Special Needs Chat and Support Group

[alioops]

Thanks Christine!

Em is doing great now, Christy has been a huge help with things that her girls can eat as they can tolerate most things that Em can. we have 2 months till we have to start challenging her with custard and yoghurt, and i am not looking forward to it coz it will more than likely mean more yukky nappies. i should be onto cloth by then too. i think we will keep some sposies for that stage coz it is gross at the best of times, so i am not going near it when she is sick! I am finding more and more in the shops that she can have and i am lobbying for places to make dairy free rusks as they are not that easy to make IMO.

[christy]

Ali *hi!* I'll send you some info if you like, PM me your email addy & I can send some recipes I am working on.... dairy free & hidden veges.

Matilda's been off cows milk products since August and we trialled some biscuits somewhere & yep... even cows milk solids cause issues. But goats milk doesn't.

Jovie, we've given cheese with yucky consequences. So we just don't use it anymore.

I guess we've resigned ourselves to not having it in our diets anymore. I do miss lasagne.... but its all good. With the girls, we ration portions every few weeks so their allergies don't get worse.

[lexi11]

Hi guys. Im new around here, but ali knows me from bh. Well, i have one little monster, her name is Alex (alexandra) and shes 2. Alex has multiple medical and developmental issues and has just been registred as disabled.

HI!

[alioops]

Hi Peta!!!!!!! was wondering how long it would take you

Has Alex gotten any better through the day?

[lexi11]

hey ali. yeah shes perked up a bit, im so relieved. took her to the dr though and its indeed full on malabsorbtion. they worried cause shes got so much wind, now this, something is going on. god, i hope brissy work it out in december!

How are you guys?

[alioops]

Oh no!! not Malabsobtion!!! Maybe you should ring Brissy tomorrow and ask if they want to see her sooner? something is not right. Glad she is happier though!!

We are all our usual selves. Em had been eating sultanas though so she is being rather regular, 2 today usually only 1! but that's not too bad.

[lexi11]

omg lol. i have to laugh...or i'll cry lol.

alex stacked it off her play equipment and has perferated her ear drum. yes im serious. we just got back from the hospital. shes being dosed up on pain stop for a while lol. and gotta go back tomorow to try and see if her grommit survived