Standing on the outside looking in...our life with autism

[mrsmac]

Maz this is the most amazing story. I went to a course for teachers on monday with a psychologist who specialises in ASD and Autism and much of what you have said he talked to us about. I think you are the most wonderful mother, you deserve a medal.

[Nettie]

I'm rather disappointed with Autism SA who have not responded to my Email of two weeks ago..

I guess you will be my only source of enlightenment Maz!

[squidipa]

i gotta apologize i have not been reading your posts maz but i will do when i have a clearer mind i have subscribed so i can come back later and read cause i do want to read.

[christy]

Mate I know when you've gotten quiet that things are hard. sew away... disappear for a minute or two.... and breath.

[maz]

AH you know me to well hon......trying to put the words that are messing around in my head down but a wall keeps coming up blocking the way.

thanks babe

[blessedatlast]

Wow Maz I only found this today.. What I have read so far is so amazing.. Thank you so so much for sharing this amazing journey with us.. You are such a strong lady and wonderful mother..

[kirsty_lee]

Maz, I have seen this thread quite a few times pop up, but never actually sat down and read it. This morning whilst having my cup of tea I read every word, every page. I cried & I laughed. I cried for your 'knowing' that something wasn't right, I cried when you grieved for the child you didn't have and I cried when you felt the sadness of what was to come. Coming from an abusive upbringing, I know that it can sound patronising when people say 'wow your amazing to have come so far bla bla bla' so please believe me when I say I do not want to patronise you or make you into some sort of matyr for doing something that sadly many families do, but I truly do think you, and women like you are amazing. I had a shocking day with Ava-Jayde yesterday, but in comparisin to what you go through on a daily basis it was nothing. And that's not to say that doesn't give us mothers that don't have children with autism any less of a right to whinge and b**tch and moan when our kids are giving us the irrits, it just means that for me, personally, I can put it into perspective and think that yes there are many worse things that I could be dealing with in regards to my child. As soon as I finished these 4 pages, I grabbed my daughter and held her tight. Thank you so much for sharing your story maz, I truly mean it when i say you have definately changed my perspective on things. I can't wait to read your next instalment.

[Curmon]

Right now i am at work doing night shift as a nurse. My other job is working casually as a respite care for kids with special needs. Alot of our clients are kids with autism and some of the things you have been writing about are things i have come across whilst at work. Reading your experiences has cemented the love i already have for my job. The highlight of my job is seeing a child do "something special", which as you know is sometimes the simplest things like eye contact, touching you, or even leaving their clothes on in public. I suppose the other highlight and its something that comes from within me is knowing by doing my job it give the parents a well desevered break. Time to rekindle marriages, spoil other kids........time to just feel human and get ready to do it all again.
Good on you for writing about this and sharing it with us all

Claire

[AngelPants]

i must say i am so grateful for you for sharing your experiences from living with autisim. it is something that most people really struggle to share.
my cousin is a SN child, going to a special needs school in melbourne, reading about your steps forward and back made me smile and want to cry alternatively but remind me of our girl and how devestating the steps backwards have been. i hope things keep progressing with more steps forward than backward :wink:
Clare

[~StarBright~]

Wow maz- thank you for sharing your families journey with us xoxoxo

[Nettie]

Get me a tissue...

[boomba]

Maz I have never read this thread but am so glad I did tonight! Your an amazing woman and your beautiful children are so lucky to have you. Thakyou for sharing your story in its raw untouched nature

[~TT40~]

Thankyou for sharing your story, and the things youve had to do to get through day to day. I always thought 'it would be hard/a challange/a struggle' but you never think how much...the little things like having a meal together as a family isn't as simple as it should be.

Amazing how many things we take for granted.

thankyou for sharing

[meow]

Maz thank you so very much for sharing your son's journey. It has meant a lot to me to read it.

I was in the kitchen, he was watching tv in the lounge while I was preparing tea in the kitchen and I watch him...when he suddly stopped rocking, turned to me, looked me in the eye and said mum. I was screaming on the inside..woo hooo and holding back the tears I simply answered him with yes Wilhelm...he smiled at me....winked and then looked back at the telly and that was that....he never rocked again from that day. My boy smiled at me...he said mum and smiled at me. He didnt scream at me, lash out with throwing a car at me or the chair...he didnt head butt the ground..he searched for me, found me and made eye contact with me....we were winning......we were breaking through.

Oh lordy I sobbed. I'm so glad your son had this break though... what a memory. I ache for this day.