(Update) Emmy with Brain Atrophy!

[joeykp]

I know it has been a long time since you have posted but I was wondering how your daughter is doing now.

My dd is 4 moths old and was diagnosed with extensive brain atrophy at birth. Trying to find information on this is a nightmare and if you have any suggestions of where to look would be great.

Once again I hope that you daughter is doing very well

Joey

[jeca_s]

my son\s also been diagnosed with brain atrophy..how is she now?? i would like to get some answers cause the neurologists wont give us anything... my baby was born at 35 weeks weighting 3.10lbs ... he has severe GERD and intra uterine growth retardation.. he's now 4 months old and weighs only 10 pounds.. he vomits everything.. h e smiles..and cooes.. and puts his fists in his mouth.. he can't keep his head straight it's still wobbly..but he tries to push him self when i hold him by his hands.. he can turn when on belly but not the head he cries and screams.. what should i expect over the next year??? he is also tube fed,..not because he can't suck but because he vomits everything and loses weight.. so we had to intube him to get some results...

[jeca_s]

my son\s also been diagnosed with brain atrophy..how is she now?? i would like to get some answers cause the neurologists wont give us anything... my baby was born at 35 weeks weighting 3.10lbs ... he has severe GERD and intra uterine growth retardation.. he's now 4 months old and weighs only 10 pounds.. he vomits everything.. h e smiles..and cooes.. and puts his fists in his mouth.. he can't keep his head straight it's still wobbly..but he tries to push him self when i hold him by his hands.. he can turn when on belly but not the head he cries and screams.. what should i expect over the next year??? he's also tube fed.. not because he cant suck but because he vomits everything and loses weight.. so we had to intube him to get some results...