I just wanted to update on what's happening at the moment. This is becoming less about BLS and much more about health issues....

I took DD back to the paed yesterday. We started off well in that he is happy with her weight gain (she is still in 3-10th centile but is gaining at an expected rate so all's well there. In spite of tooth after tooth after tooth breaking through she's been eating loads recently, the meat etc is often being eaten through slightly sneaky tactics, but it is getting eaten a bit as well as broccoli, spinach etc. I think the losec/chiro is helping her so she is happier eating too. I am often astounded about how much she is eating and she keeps asking for more!

The allergies seem to be mounting up though - recent reactions include grapes, raisins, those Belamy's freeze dried apples and somethign this morning which may have been soy or dried cranberries, both of which she has eaten previously and neither of which have caused a problem before. She's getting a rash round her mouth from lots of foods. We've cut back severely on dairy and the paed has advised to continue like this. He's suggested not removing it entirely but definitely keeping it at a reduced rate as she seems happier like this. I'm finding that the dairy substitute foods aren't going down well with her though and instead I am gradually finding alternatives. We're going back to an allergist (a different one) who will likely do more tests than the first and will also give us a follow up plan this time.

The big blow though was that she still has problems with her chest/lungs and they are worsening. She has crackles in both lungs now as apposed to just one last time in spite of not having had a cold for a few weeks. She has aspiration and her breathing rate isn't great either. The paed was worried about her immunity (as am I) - she gets every single bug doing the rounds and takes 10 days to fight it off every time. She almost stops eating each time too. We have to take her for blood tests and xrays for numerous things (I can't read his writing on the forms and I can't remember each and every thing he mentioned - wish I'd taken a notepad and someone else with me so I still had the details now...) as well as a sweat test for Cystic Fibrosis We are, as you would imagine, pretty worried about this. I am trying to stay away from Dr Google, but it's so hard. I don't know enough about it to just leave it with the little knowledge I have. My mummy's instinct tells me there is something wrong, but I don't think it's as major as CF, although that isn't stopping me from worrying/wondering etc. We're waiting for the appointment to come through for the sweat test then we can have all the blood tests/xrays at the same time.

So that's where we're up to for now. If anyone has any experience with any of this and can put my mind at rest/let me know what to expect etc I'd love to hear from you.

For anyone I'm friends with on FB, please no mention on there atm - we've decided to keep it from our families and save their worry until we have some more info. I did tell me mum last night because DH was in meetings until really late and had forgotten his mobile phone (d'oh) and I just needed to tell someone.