Hi OP

My DD was diagnosed with Coeliac a few months ago. She spent a few nights in hospital before we got the diagnosis, she was very sick. (vomiting, losing weight and muscle tone, lethargic). She is two now.

We were given the option of the endoscopy but after speaking to the Drs we chose to change her diet and take it from there. Her blood test was off the charts and cutting out gluten was an instant improvement. We didn't want her to go under again as she had already had an MRI and I didn't want to put her through anesthetic again if I could avoid it.

We went for her four month check recently and again opted not to do the gluten challenge and endoscopy. She is a different kid on the gluten free diet and we decided that when she is older she can choose to check further, but for her Dr and for me ... The answer is clear that it was gluten making her so sick.

Just FYI that although the endoscopy is the "gold standard" you can still opt to change the diet and take it from there. there is also a gene test to see if they carry the gene that is not so invasive (we haven't bothered... Her recovery speaks for itself)

Also. The gluten free diet is challenging. But once you know the right things to look for and the right questions to ask when eating out it isn't so bad